Tuesday, November 28, 2006

Letter to Simpsonwood Attendees

An Open Letter To All Attendees of "The Scientific Review of VaccineSafety Datalink Information" meeting, June 7-8, 2000 Simpsonwood Retreat Center:My name is Russel Vincent Mancino. I live in a small town in NewJersey. I have a nine year old son, Russel John Mancino. My sons middle name is taken from his maternal grandfather. The reason I did this is because my father in law could always be counted on to do what was "right" and to look out for others from a purely selfless sense of moral conviction, despite the hardship that came when he took on the role of a caretaker. He is not a physician or scientist, but the way he cared for his family and friends always reminded me of how a doctor would treat his patients. I always wanted to be a doctor but I was afraid of making life and death decisions. I chose instead to pursue a career in law. Ironically I am a trial attorney and I defend doctors and other health care professionals when they are sued for malpractice. I always held physicians in high regard and I wanted to stand with them if they were ever sued. I felt it was my duty because of all the good they do that goes unnoticed and unappreciated. I wanted my son to have traits of myself and his grandfather. It's funny how much thought goes into naming a child. Especially when you learn that there are so many other decisions you make atthe time of birth can be so profound and have a life long effect onyour child. Like the decision to allow a vaccine to be injected into your child, under the false assumption that the safety of that vaccine has been demonstrated. By now you are wondering who I am and why I am writing to you about my son. My hope is that you are curious and will read on to find out why you are one of many receiving this letter. My son was diagnosed as suffering from autism at age five. I know you are intimately familiar with this autism from my research which began immediately after the neurologist who made the "diagnosis" uttered that heart breaking and life changing word, which she explained was causing his unusual behavior. She made equally clear that this condition that has no cure, gave me the grim prognosis as well as a glimpse of what the rest of his life, as well as mine, would be like. With a word, the hopes and dreams I had for my son were shattered. Everything I worked so hard for to make his life happy, to help make it a little easier than mine was suddenly of no consequence. You may not know that feeling but I know of many fathers who know it all to well. It is emotionally devastating and physically sickening. Not a day has gone by since his diagnosis that I haven't asked how and why. Not a day has gone by that I have not found myself dry heaving from the fear and frustration that I feel every waking minute of each day of what the future holds for my son. My frustration is that it is now clear that I may have been able to prevent this from happening to him. If only I had done a little investigating or asked a few questions, rather than blindly following the recommendations of you and the other so called experts on vaccine safety, he could have been spared from this condition about which so little is known despite the improbable number of children who have been similarly diagnosed.I understand that you were present for and participated in a meeting which included health care providers, members of various government health agencies including the CDC, NIH, IOM and FDA, drug company representatives and others who are also charged with protecting the health of the citizens of this country. I include drug company representatives as being responsible for this charge. Not only because they were invited to attend the meeting but becauseI believe anyone who had knowledge of this horrific, life threatening information available at this meeting were equally obligated to share that information with the public as the doctors and scientists who attended this meeting despite the inherent conflict of interest that existed between those making health policy decisions for the people of this country and those who stand to profit from those policy decisions. Everyone and anyone who participated in this meeting is culpable and responsible for the consequences that have resulted.In case you have again failed to make the causal connection, or continue to deny the truth, I am referring to "THE SCIENTIFIC REVIEW OF VACCINCE SAFETY DATALINK INFORMATION" conference which took placeon June 7-8, 2000 at the Simpsonwood Retreat in Norcross, Georgia. From what I have learned this was a gathering of doctors and scientists convened to study the data collected and review reports pertaining to that data, whose main author has been identified as Dr. Thomas Verstraeten. The general purpose of the meeting was to address the correlation between heavy metal exposure from childhood vaccinations and neurodevelopmental injuries in children. More particularly, the issue was whether the staggering increase in childhood neurodevelopmental delays and disorders in this country was the result of the use of known neurotoxins as preservatives in vaccines, purposefully injected directly into the bloodstream of newborn babies, a practice mandated by the United State government vaccine and immunization schedule. As you are probably aware there is an increasing number of doctors, scientists, government officials and above all else parents, who through tireless research in the hope of helping their children, who believe that there was a cover up by all of the attendees of the Simpsonwood meeting about the known risk of injecting newborn babies with neurotoxins that were used by drug companies as preservatives to increase the shelf life, reduce contamination and cut the cost of making vaccines without the preservatives. This as you knew then and we know now could have been done for a fraction of the cost of what it will take to pay for the lifelong care of these children. Instead a portion (1 in 166) of an entire generation of children were sacrificed in order to cover up a deliberate decision to not hold the drug companies responsible for the products they put on the markets and to avoid the embarrassment of the CDC, NIH, IMO and every other alphabet agency of the federal government that isresponsible for safeguarding the public. In a word your conduct and the conduct of everyone else charged with protecting our kids was despicable. How you can live with yourselves is beyond comprehension. How you can continue to deny the facts, frustrating the efforts to get the funding needed to help these kids, is criminal.I have a request on my son's behalf. What's done is done. But it'snot over. I would respectfully request that you come out in public, acknowledge the truth and join the fight to eliminate neurotoxins from ever being used in another vaccine again. Any notes you have from the meeting would be of help in our fight for a cure or to just help with developing that is safe and may help restore what has be taken from these kids. Alternatively please provide the rest of us who were not invited to Simpsonwood with the specific data and information upon which you relied to allow the continued use of neurotoxins in vaccines tha twere still on the market at the time of the meeting in June, 2000.Vaccines which continued to be given to newborns whose immune systems could not handle the toxic load. Newborns who have succumbed to the devastating effects of having toxic metals into their blood compromising the developing brain, a fact that all of you were aware of yet chose to ignore and cover up even until today. I would love to see the vaccination records of the children and grandchildren of the "Simpsonwood Conspirators" who poisoned a nation. I hope your children and grandchildren are fine. I would not wish what my son, my family and every other family who has a child with mercury induced neurotoxicity has gone through (and will continue to go through) on anyone. Not even on the people who had the power to stop it and failed.If you should have any questions you can e-mail me. If you want my address for service of process I'll give you that. If you want to help send any information you have from the meeting at Simpsonwoodthat might help us treat our children and give them a chance at life. As men and women of science who took the Hippocratic oath("First do no harm") I feel you owe it to us. Send any information you have to the American Autism Association, a group that lost a pioneer and a deeply committed man who spent most of his life tryingto help those inflicted with this terrible syndrome, Dr. BernardRimland. You can also send it to Dr. Sid Baker, Dr. Andy Wakefield,Dr. Jim Neubrander, Dr. Stephanie Cave or Congressman Weldon. These are names you are probably familiar with because these men and women have been on the front line fighting the battle for our kids. A battle necessitated by your inaction, neglect, recklessness and failure to live up to your commitment to help rather than hurt. My goal was to e-mail everyone at the conference. However, it is taking too long to track down all the addresses and I want to get this out today as time is essential.Respectfully, Russel V. MancinoProud father of Russel John Mancino, who only wants to be likethe "other kids".I'm would appreciate it if anyone and everyone who is copied on this e-mail can send it to a friend or two and to your representatives inthe House and Senate and anyone that you know of who may have been at Simpsonwood for this meeting. Thanks.

99 comments:

Anonymous said...

The wall is crumbling.... these people knew, did nothing and covered up the facts. Tragedy.

Jonsmum said...

"As men and women of science who took the Hippocratic oath("First do no harm") I feel you owe it to us."

Thankyou Russel.

I hope someone listens to you, and your name goes down in history as "the man who broke the silence".

Anonymous said...

He won't. Because there was no cover up. The people knew that the cause being mooted was not the cause at all. They knew Autism has a genetic origin - it's an established fact dating back to when Autism was first discovered. Government's know it, and no one (that includes that Geier character) has come up with any cast iron medically proven proof that there's any truth in the assertion.

I have every sympathy for the father here, and for the boy. What they need now is support. It's going to be a rough ride for the boy - luckily he's at an age where proper training (by a psychologist) can have an effect. The sooner this is done, the better - and the future can be planned out with more confidence than obviously exists right now. Maybe the father won't get what he wanted to begin with, but does anyone have a perfect life? I mean really?

Of course this fantasy about a cure for Autism needs to be nipped in the bud first! And quickly!

Fore Sam said...

Anon; See my entry "Pending Psychologist". The picture explains how much help psychologists are with autism.

Erik Nanstiel said...

Anonymous, there can be no such thing as a genetic epidemic. We have a big epidemic here. And not just here. China. The middle East. Asia. Basically all the customers of the W.H.O.!

I know that you folks who cherish the brain misdevelopment labeled as autism want to keep these children disabled... because you're comfortable with yourselves... and probably like watching these children regress from normal/neurotypical children into future clones of yourselves... but we their parents don't care for it one bit.

We could do without the viral infection of their intestines... the chronic diarrhea, malaborption of nutrients... the autoimmune reactions their little bodies have against their own nervous system & brain... and the mercury toxicity.

These things do not constitute "neurodiversity." They cause it.

So let's do the research that can heal their bodies. Let's clean out the metals that don't belong there. Let's correct their mineral deficiencies and bring their viral loads down until their immune systems can handle them on their own. And finally, let's get them the therapies they need so they can cope with their SOCIAL environment and be capable of living happier, more independent lives.

This is not a fantasy. "Cure" is a bad word, because even after medical problems are corrected... after a certain age, the degree of recovery can be much more limited. Because the brain may already be fully grown and misdeveloped. It may be impossible to recover a 15 year old... but relatively easy to recover a 5 year old.

Erik

Anonymous said...

Firstly - just quickly - the picture you refer to is completely inappropriate and offence, Fore Sam!

Now, Erik, to you. This is not a case of "wanting" to keep the children disabled. You're right - it is possible to limit the psychological damage when the child is young. But the damage provided by the disorder to start with is PERMANENT! The trick is to teach the child how to cope best, through psychology. It requires specified teaching that a regular school teacher AND a regular doctor are not qualified to do. The root problem can never be completely eliminated, but if the child can be trained PROPERLY the fall out can be limited. No drugs - except any to control other symptoms that may or may not come up, and even then that has to be carefully considered due to the side effects. That applies to things like psychotic episodes for example.

And you're right about something else. There is not such thing as a genetic epidemic. And yet you lot are claiming there IS an epidemic. It doesn't exist, because Autism and the other spectrum disorders have always been there (as explained on the Michelle Dawson Missing Link thread).

You parents might not like it - but by fighting it as a disease you are doing your children more damage than you would otherwise do byt doing things correctly! Love your children as they are, and do as much as you can to help them in the correct way. If you don't then you fail as parents. Concentrating on something you can see won't solve the problem. You can clean out as many metals as you want. The damage will remain because it is genetic. Concentrate on that - and accept your child as unique. Don't try and make them a part of the rat race. That's a one way trip to a intolerant society we are trying to get away from - and failing because of lazy quick fix parents like you.

Anonymous said...

"The damage will remain because it is genetic".

Wrong. No way. There are genetic factors but it is certainly not ONLY genetics. What have you been smoking?

Anonymous said...

You're an idiot. The genetic damage is permanent! You admitted it existed so you defeated your own argument. Any other factor does not delete the root problem. At all.

And I don't smoke at all.

Jonsmum said...

anonymous

"You parents might not like it - but by fighting it as a disease you are doing your children more damage than you would otherwise do byt doing things correctly!"

Excuse me but who said autism was a disease, and who is treating autism as a disease?
Are you referring to mercury poisoning?

"That's a one way trip to a intolerant society we are trying to get away from - and failing because of lazy quick fix parents like you."

Off course, I forgot. You weren't actually at my house or my sons special needs nursery, when he went through session after session of speech and language therapy, which was eventually abandoned after he consistently responded to the therapy and therapist with distress and aggression.

You obviously didn't know about the 60 PECS exchanges a day, for months, that taught him nothing but frustration at his need and failure to line all the pictures up perfectly.

You weren't with us when we attended a six week Hannen Programme, aimed at 'teaching' parents how to communicate effectively with their child, which taught us nothing more than what we had been doing for at least a year before we even thought our son had any problems!

You weren't with our family at various meetings with educational professionals who tried to deny our son access to a special needs school, and persuade us to place him in a maistream school with no specialized autism specific teachers or classes.

And you certainly weren't there when I needed to write the equivalent of a thesis, explaining my "parental views" to the local educational authority. Justifying why I felt my son needed a placement in a special needs school, BEFORE he could be assessed by an appointed educational psychologist to evaluate his obvious needs.

But you weren't to know all this, before you opened your big mouth and criticized parents you know SFA about.

"Love your children as they are, and do as much as you can to help them in the correct way."

So, before you open your big mouth again. Concentrate for one second. You may not like it, but try to consider the possibility that the parents you berate for not loving their "children as they are", have done everything in their power to help and support their children, exactly because they do love them as they are.

Do you get it?

Anonymous said...

I already got it, and you still don't. By going down this mercury poisoning path, you ARE treating Autism as a disease! And it's NOT!

Think for a moment. Why is your son reacting the way he is? Because he wants nothing to do with your current actions. So you try to find out why. That's what you're not doing. Trying to find out why he reacts badly. And I don't mean a simple reason - because there isn't one. It's a complicated reason, and only one person knows the answer. Your son. Now the trick is, how do get it out of him without causing more distress. That's the hard part - and have you even tried that? From what I'm reading - NO! Therefore, you don't care what he thinks.

Think about THAT!

My parents cared about what I thought. And the trick to get through if you can't (or won't) is to go to a psychiatrist or psychologist. They are the ones who have the experience and the knowledge to break down the barriers.

Anonymous said...

"You're an idiot. The genetic damage is permanent! You admitted it existed so you defeated your own argument. Any other factor does not delete the root problem. At all.

And I don't smoke at all".

Sweet cheeks by genetic factors I was referring to a certain subset up children who can't excrete toxins or have autoimmunity issues, etc. Therefore, they have a "genetic" component but it's all about the crap that we inject into them (or prenatal exposures, etc, etc). Get a clue. It is possible that you are going to get thrown off the ND island though for this comment:

"The genetic damage is permanent"!

The ND's don't consider their children damaged at all... Take your torch and leave the island.

Perhaps a little marijuana wouldn't be so bad in your case. Look into it.

Anonymous said...

ND Island? Keep your marijuana, buddy! You need it more than anyone!

You get a clue, and accept the genetic factor because it's established medical FACT! And the governments have accepted that because it has credible evidence! Unlike the junk Geier has been babbling about! It has got NOTHING WHATSOEVER to do with your garbage or his.

Get that through your marijuana ravaged skull if you can! If you can't you better stop and take off your blinkers!

Jonsmum said...

Anon;

"Why is your son reacting the way he is? Because he wants nothing to do with your current actions."

"And the trick to get through if you can't (or won't) is to go to a psychiatrist or psychologist."

"It requires specified teaching"

My son is in an autism specific class at a special needs school, and the 'no longer' "current actions" that my son wanted nothing to do with, were the "tricks" recommended by his psychologist.

Any more tricks up your sleeve for our children with "genetic damage"?

Fore Sam said...

Anonymous; The established medical fact is that the doctors keep telling us there is no known cause or cure for autism. They don't say it's genetic because they know it isn't. They just won't admit the truth.

Anonymous said...

"You get a clue, and accept the genetic factor because it's established medical FACT"!

Laughing my ass off - Established medical FACT?!?! Are you off your rocker? Where's your evidence? Even the people who poisoned the kids in the first place (CDC, FDA, etc) don't think it's only genetics. Clue in.

Anonymous said...

They don't say it's genetic because they know it isn't. They just won't admit the truth.

Remove the ear plugs! They DO say it's genetic! Which doctors are you listening to? The wrong ones obviously - the quacks who have no idea, and they won't say either way because they're scared of determined stubborn mules like you taking them to court! And I say rightly so! Get off their backs and let them do their job instead of telling them yourself - when you aren't qualified to do so!

Laughing my ass off - Established medical FACT?!?! Are you off your rocker? Where's your evidence? Even the people who poisoned the kids in the first place (CDC, FDA, etc) don't think it's only genetics. Clue in.

I'm arguing against the so-called evidence being provided here. So you provide your evidence first. And the confessors you are talking about aren't qualified to make such a confession. Are they psychologists? NO!

I will say that where I live there was no mercury in any innoculations, and yet I'm an Aspie! Care to explain that one?

My son is in an autism specific class at a special needs school, and the 'no longer' "current actions" that my son wanted nothing to do with, were the "tricks" recommended by his psychologist.

And you're giving up on it? If so, then you're a poor excuse for a mother. Keep trying! Don't stop otherwise you'll NEVER understand your son. And as long as you never understand you'll never be able to be a good mother. And if you love your son you'll move heaven and earth to understand. Not cop out to the theories of the fantasy world of John Best Jr - undiagnosed Autistic Spectrum!

Fore Sam said...

Simple Simon; You're not Asperger's, you're just a weirdo. You got diagnosed as an adult so you could spunge off the taxpayers and collect a disability payment.

Jonsmum said...

Anon;

"My son is in an autism specific class at a special needs school, and the 'no longer' "current actions" that my son wanted nothing to do with, were the "tricks" recommended by his psychologist."

"And you're giving up on it? If so, then you're a poor excuse for a mother. Keep trying! Don't stop otherwise you'll NEVER understand your son. And as long as you never understand you'll never be able to be a good mother."

Who said I gave up on anything?

The psychologists with all the tricks, decided they weren't working and revised their approach, from doing something that my son could not tolerate, to stopping these therapies and doing nothing.
They were the ones who "gave up on it", because they were wrong in the first place.

So by your logic they must be poor excuses for psychologists.

You're having a laugh here.

Jonsmum said...

John;
This joker's taking the piss, and
its pretty obvious who he is.

Anonymous said...

OK - I guess it's time for an ID.

http://www.philsworld.com.au

Now don't you DARE call me NOT Aspergers! (And I'm not Michelle either so don't jump to conclusions)

Second - yes, those psychologists did give up, and they should be ashamed of themselves. You should be pursuing them for laziness, instead of following their lead! (Copping out to this is giving up BTW!)

Third - I'm not taking the piss. I'm deadly serious. I've done my research, and you lot are jumping the gun and are claiming a case against the government and the creators of Thiomersal. I know there's a class action coming up in June 2007 - and I expect it to fail. Why? Because you can't prove Autism is caused by mercury poisoning. I've already given you evidence of the existence of Autism BEFORE Thiomersal and that's bound to come up in the hearing.

And it's why the case will be lost. Because Autism is NOT caused by mercury poisoning. And like I said, if you don't like the politicians, vote them out. And run yourselves if there's no one else! Oh of course you won't - you don't have the guts to do the right thing! And that is ADMIT that Autism can not be cured and demand support for the full time job of caring for your children. Stop running to the simple solution that doesn't exist. That makes you all cowardly intolerant lazy fools afraid of some hard work.

And litigation happy to boot!

Fore Sam said...

Phil; Please accept my apologies for thinking you were one of the lunatics who used to frequent this blog to insult me.
You're still wrong about everything though. Autism is curable.

Anonymous said...

No, you're wrong. The only thing that is curable is the attitude that makes things difficult for us spectrum sufferers to exist in the only way we can - our way.

The sooner you accept that the THEORY of mercury poisoning is no more than that (a theory) - the better. It will soon be proved as wrong in court in June 2007.

Fore Sam said...

Phil;
You're very naive to think anything can be proved in court.
You're also naive to think you can change society. You'd be much better off looking into a cure.

Anonymous said...

Dear Phil,

It is very possible that your Asperger's had nothing to do with mercury and/or vaccinations. The fact is, however, many children under the age of 20 have been injured by vaccinations. That is the one piece of information that you have missed in all of your "reearch". I hope that you can smarten up soon.

Sincerely,
A friend

Anonymous said...

You're very naive to think anything can be proved in court.

Hello, pot calling kettle! You're right - and what can't be proved is YOUR argument!

You're also naive to think you can change society. You'd be much better off looking into a cure.

There isn't one, as I said. To look for a cure to start altering DNA - and that's a path the human race should NEVER go down EVER. Changing society is the ONLY option - and the UN agrees (per the Universal Declaration on the rights of the disabled).

And just as a side issue, changing society away from intolerance is also the long term cure for the War on Terrorism. Without that - we're doomed anyway. If we can solve that, the extremists who won't listen will have lost their support.

And that's what you are, JB - an extremist (of a different variety of course). Your hatred is blinding you and you should open your eyes.

And to "Friend", you had better learn to spell if you want my attention. Reearch? LOL. And anyway, unless you are a fully qualified psych - you have no right to claim what you said as "fact". It's fiction anyway - fiction based on a lazy panic stricken fool who is looking for an easy way out of a difficult situation. What's the problem? Too lazy to do the hard yards needed? People like you make me sick.

Phil said...

"In my case, the disability also includes a touch of Schizoid Disorder (not to be confused in any way with Schizophrenia).

Some of the features of Asperger's Syndrome and/or Schizoid Disorder include an excellent rote memory, the ability to absorb facts easily, a generally high standard of maths and science, a general inability to cope with criticism or imperfection, a target of teasing in the school environment causing withdrawal into isolated activities, an unusual gait or stance with a tendency to be clumsy, a presentation that is often seen as odd or eccentric, an appearance of good language skills but limited content, poor social understanding, a louder than normal voice with a tendency to be hyper verbal, a tendency to live in a fantasy world, a tendency to be disorganised, obstinate, callous, vindictive or insensitive, a tendency towards obsessional questioning, a tendency to be restless, repetitive or a strong sense of perseverance, and may have fads or obsessions."

Fore Sam said...

Phil; I'm no extremist. I'm just a guy trying to do what's best for my kid.
As far as this blog goes, all I've been doing is pointing out the stupidity of people who share your point of view. Denying that kids are being cured is stupid. So is claiming that all famous geniuses were autistic. Next you'll be claiming Secretariat was autistic, along with Cassius Clay and Babe Ruth.
No sane person is buying your bullshit so the best thing you can do is learn how to cure yourself.
The differing behaviors along the autistic spectrum relate to how much mercury one was injected with and whether they can excrete it or not. The claim that your ancestors had ASD just shows they were poor excretors of mercury.

Anonymous said...

You are an extremist. You can't duck the fact. The viewpoint that you hold is that of an insane person - driven that way by the inability to cope with the requirements of a child with Autism. I am perfectly sane, as is everyone who knows the real truth. In the real world - you are wrong. Your inability to accept this fact is driving you mad. You are in serious need of help and quickly. The link to mercury is not proven and nor can it ever be.

This blog will be seen for what it is when the June 2007 court case throws the mercury theory out. Then what will you do, hmmm? I can guess. You'll go completely mad - and I'll have the phone number for the men with the white coats handy. I have accepted myself for who I am. An Aspie. And proud of it despite it's pitfalls. It's called tolerance. Try it sometime - if you have the guts!

Fore Sam said...

Anon;
Asperger's is mercury induced brain damage which means that you are proud of having brain damage. The people who poisoned you are happy that you have that attitude. They are thrilled that you are not sane enough to accept the truth and sue them for their negligence.
I don't need any help. Yesterday, I caught a 7 to 1 shot at Aqueduct, a nice perfecta and a 12 to 1 shot at Hollywood. Thursday, I shot even par 71, a nice way to end the golf season. It should have been a 69 but I got tired and bogeyed two out of the last four holes because I had been up late with my kid the night before.
So, you're right in a way. If I can cure my son, my golf score will probably be under par most of the time. If I don't have to deal with meltdowns while I'm trying to handicap races, I'll probably make more money. Whatever happens in court won't affect me as it will have no effect on my son's well being. If I manage to cure him, I'll file a suit and he can testify for himself that removing the mercury cured him. If that happens, any jury will rule in his favor regardless of what happens with the Autism Omnibus case.
You should try golf. It might be good for your sanity.

Jonsmum said...

Phil;
You decribe yourself, amongst other things as having a tendency to be "obstinate, callous, vindictive or insensitive"

You don't sound very 'tollerant' to me.

Asperger's aside, how can someone with a schizoid personality disorder describe themselves as "perfectly sane"?

Keep up the insulting rants.
If you said anything nice about me, I would be worried.

Anonymous said...

And to "Friend", you had better learn to spell if you want my attention. Reearch? LOL.

Yes, friend, I really thought that you spell research - reearch. Yes, I am that stupid. Please? You have a lot more "research" to do on the real important topics such as how vaccinations can trigger autism in children. Please don't bother with the silly things like typing errors.

Anonymous said...

Best, if you filed a lawsuit you'd be bankrupted because you'd lose. When the June 2007 decision goes against the class action, you'll probably lose your son for poisoning him with chelatin! The class action case will set a precedent that any case by you could not overcome. I am sane. You are insane - driven that way by paranoia and stupidity caused by your laziness towards the true solution for your son. It looks to me like you are the brain damaged one because you are seeking "normality" when there is no such thing. My brain has not been damaged by mercury. My DNA is the damaged part of me - and that goes back two generations AT LEAST!

Jon's Mum - you just did the same thing every other stupid person does. Mixed up Schizoid disorder with Schizophrenis when I made it clear they were two different things. Anyway - the way I am is because of Asperger's. The Schizoid Disorder came later, and I'm pretty sure I know where - from a couple of pathetic teachers at school. It would have been worse if my parents hadn't changed my school to protect me.

I've done my research, "Friend". And a lot more than you have. The typing error showed that you weren't paying enough attention to the job at hand and your acute laziness like the rest of Best's supporters. The conclusion?

All Autistic Spectrum Disorders have a genetic basis

Stop trying to fiddle with the DNA you lot. You aren't God. You can't do it.

PS - any vindictiveness out of me is provoked by the sheer stupidity of this blog, and the genuine fear I have for idiots like you who aim to deprive us of our right to be ourselves with these flagrant lies about the origin of ASD's. The sooner you are silenced the quicker we will get the REAL help we need. Tolerance and funding.

This blog is completely offensive to the truth and I will be doing my utmost to have it deleted.

Fore Sam said...

Phil; Asperger's is brain damage no matter what the cause. No society will ever be tolerant of you and your ilk who won't get off your asses and help yourselves. You have no excuse for receiving poor treatment from people when you persist in being a pain in the ass.
All ASD's should be eradicated, not accepted. I think you and Michelle need to be put in protective custody and cured. Stop blaming society for your troubles and act like a man.

Jonsmum said...

Phil;

"Jon's Mum - you just did the same thing every other stupid person does. Mixed up Schizoid disorder with Schizophrenis when I made it clear they were two different things."

I copied and pasted YOUR own words describing yourself on YOUR blog.
Therefore YOU just did the same thing every other stupid person does.

I worked with Schizophrenic's for 13 years. I know the difference between Schizophrenia and Schizoid personality disorder.

Anonymous said...

The typing error showed that you weren't paying enough attention to the job at hand and your acute laziness like the rest of Best's supporters. The conclusion?

Really? So what does the fact that you spelled chelation wrong mean? You spelled it "chelatin". Was that stupidity or laziness?

Jonsmum said...

Anon;
Are you genuinely a friend of Phil's?
I read your first comment to him: Dear Phil, Sincerely, a friend.
I don't wish to criticize you, I'm just curious as to whether he realizes you are his friend and how he is treating you.

Anonymous said...

Asperger's is brain damage no matter what the cause. No society will ever be tolerant of you and your ilk who won't get off your asses and help yourselves. You have no excuse for receiving poor treatment from people when you persist in being a pain in the ass.
All ASD's should be eradicated, not accepted. I think you and Michelle need to be put in protective custody and cured. Stop blaming society for your troubles and act like a man.


That proves you are a coward. I am a man. You are not. ASD's can NEVER be eradicated. To do so would be genocide. You are the one who needs to be arrested and restrained for your intolerance. Without ASD's we would never have had the advances in science that we have had (read - Einstein, Newton etc).

I copied and pasted YOUR own words describing yourself on YOUR blog.

And it said "not to be confused with Schizophrenia" - and yet you made a comment that insinuated I had Schizophrenia. Hence my response. Get a clue.

Fore Sam said...

Phil; Wake up! Einstein and Newton were way too smart to have been ASD. If their brains had been poisoned by mercury like yours, they would have also had inferior intellects.
I don't care if you call yourself schizoid, schizophrenic, or anything else. You are one looney tunes wacko. Pick whatever name you want to use.

Jonsmum said...

Phil

You said this:

"And it said "not to be confused with Schizophrenia" - and yet you made a comment that insinuated I had Schizophrenia. Hence my response. Get a clue."

Will you please quote where I commented and insinuated you had schizophrenia?

Anonymous said...

You said;
Asperger's aside, how can someone with a schizoid personality disorder describe themselves as "perfectly sane"?
That is a description of schizophrenia, not schizoid disorder. And along with that, the part you quoted said I had "a touch" of the disorder. Get it now?

Phil; Wake up! Einstein and Newton were way too smart to have been ASD. If their brains had been poisoned by mercury like yours, they would have also had inferior intellects.

You wake up! You just proved that ASD's are NOT caused by mercury poisoning. They were ASD! They had high IQ's! It's a fact! And you can't handle it because it's the perfect contradiction to your wild theory. Accept it. You're wrong. Even I have an IQ of 131. If I'd been poisoned I wouldn't have that result either. And yet I'm ASD as well! Both my father and my grandfather are/were smart as well. You're even suggesting HFA doesn't exist with that BS!

Any more excuses?

Fore Sam said...

Sorry Phil, High IQ's are evidence that a person is not affected by mercury since it kills brain cells. You people with ASD who make up your own IQ tests to make yourselves feel good just can't compete with actual geniuses. If you had not been poisoned into Asperger's, you would have a higher IQ. So would have your ancestors. You ASD dopes think you're all smart just because you spend lots of time with your heads buried in books. Those of us with high IQ's speed read the books just to see if there's anything worthwhile in them. We can figure out what we need to know without them.

Jonsmum said...

Phil;

I said:

"Asperger's aside, how can someone with a schizoid personality disorder describe themselves as "perfectly sane"?"

You said:

"That is a description of schizophrenia, not schizoid disorder."

That is nothing remotely like a description of schizophrenia.
That was me saying someone with a schizoid personality disorder, (which is a clinical psychiatric disorder), cannot describe themselves as "perfectly sane".

There are many types of schizophrenia: Simple, Hebephrenic/Disorganized, Paranoid, Catatonic. All variations of a very complex, serious and debilitating psychiatric illness.

There are also many types of 'personality disorder': Paranoid, Schizoid, Schizotypal, Narcissistic, Antisocial, the list goes on.

Schizophrenia and schizoid personality disorder are two different conditions. I am well educated on mental health issues, problems and illnesses, and have 13 years hands on experience of working with these people.

Do not insult my intelligence by suggesting that my comment about you, equated to a description of schizophrenia.

Anonymous said...

Anon;Are you genuinely a friend of Phil's? I read your first comment to him: Dear Phil, Sincerely, a friend.
I don't wish to criticize you, I'm just curious as to whether he realizes you are his friend and how he is treating you
.

No. Definately not a friend. I am trying to be a friend to him to teach him something but so far he isn't listening :)

Anonymous said...

Sorry Phil, High IQ's are evidence that a person is not affected by mercury since it kills brain cells.

Correct. And high IQ's are a key to both HFA and Aspergers!

You people with ASD who make up your own IQ tests to make yourselves feel good just can't compete with actual geniuses.

The test I did was approved by the Australian government. You love jumping to conclusions don't you? And I never claimed to be a genius. I'm just smart (131 is not genius level).

You ASD dopes think you're all smart just because you spend lots of time with your heads buried in books.

You just called your son a dope because he's ASD. And the reason we have our heads buried in books is because we want to learn! Which is more than I can say for you!

We can figure out what we need to know without them.

Oh that says plenty about you! You don't want to learn! That proves it beyond any doubt at all!

Do not insult my intelligence by suggesting that my comment about you, equated to a description of schizophrenia.

Don't insult mine by lying through your teeth. You know as well as I do that your description of Schzoid Disorder was the classic Schizophrenia stereotype.

And you again ignored the fact that I have "a touch" of Schizoid Disorder! In other words it takes up a very small part of my psych. The vast majority of it is Aspergers. Clearly you need a lesson in comprehension next time you read anything on my website!

Now if I was majority Schizoid, you'd have a point. But I don't. And that makes me perfectly sane.

Try sanity sometime. You'll be better for it. Right now you've been driven insane by the inability to cope with your son and looked for an easy way out. Result - you don't know a sane person when you see one.

Fore Sam said...

Phil;
"Correct. And high IQ's are a key to both HFA and Aspergers!"
Then how can you be ASD with your low IQ? People with the highest IQ's are not ASD. However, we recognize the fact that ASD is not a good thing. That's why we try to help or kids.

Anonymous said...

My IQ is 131. The average (I believe) is 90.

You want to try for two out of three? Quit while you're behind.

Dr Who said...

Step into the tardis, Timelord.
Your work here is done.

Jonsmum said...

Has he gone?

Anonymous said...

No, I'm still here and I'll stay here until you lot see sense.

Anonymous said...

I AM still here, Best - so you delete posts as well do you? Afraid of me? I'll put something here every day as is my right. I know you read it at least. And I am acting to have this blog deleted because of the intolerance it shows to ASD's.

You can delete posts - but you can't delete the truth of the matter. That you are wrong.

Anonymous said...

Ah - now I've just seen that I just happened to be wrong for once.

And my work is far for done as noted BTW.

Anonymous said...

Oh wait a minute, the first post is only visible on the edit page huh? Cute - and loaded with a lack of accountability.

Anonymous said...

Do the nitwits understand the concept of moderation? Geez.

Fore Sam said...

The nitwits can't even understand that they've all been poisoned and we're trying to help them.

Doctor who said...

Timelord.
Make haste to the tardis.
The planet Mercury is under siege by the evil Pharmaceuticals.
As we speak, its life blood is near depletion and I fear its inhabitants who may soon be metamorphasized.

Anonymous said...

No need - know all about it. The evil doesn't exist because you're seeing an alternative future not the real one. (pfft!)

You're the one who's been poisoned, Best. Poisoned by paranoia because you want a quick fix to your son's genetic condition. And it doesn't exist. This blog is dangerous and should be shut down because you are demanding something that can only be done by altering the DNA.

Fore Sam said...

Anon; Chelation is not a quick fix. Autism is not genetic. Help yourself.

Anonymous said...

This blog is dangerous and should be shut down because you are demanding something that can only be done by altering the DNA.

Vaccines alter DNA... how do you feel about them? You keep talking about shutting this blog down. I can assure you that there are much more dangerous blogs out there.... go find one. Who are you anyway, the blog police?

Anonymous said...

Autism is genetic. Established fact, Best. And vaccines do NOT alter the DNA! They protect your blood stream and other facets of your body from disease.

Honestly you lot are so incredibly deluded! You think you're curing Autism? I think this treatment should be properly checked out - I'll bet you're creating another monster!

And this delusion is why this blog is dangerous. It needs to be seen for what it is - propogating false hope and attacking ASD adults like me. Well I'm fighting back. And for my right to be me, and everyone's else's right to be themselves - with an ASD.

Fore Sam said...

Anon; If you want to fight to remain brain damaged, you have freedom of speech. Luckily for you, the sane people will ignore your ranting as a part of your injuries and will try to help you overcome your diminished capacity.
I think you hold a picket sign proclaiming your support for celebrating brain damage in a busy public place and observe the strange looks you'll get. If you're lucky, the cops will throw a net over you and you'll get the help you need. Good luck.

Jonsmum said...

Phil,

"And this delusion is why this blog is dangerous. It needs to be seen for what it is - propogating false hope and attacking ASD adults like me."

You really shouldn't use your ASD as emotional blackmail or as an excuse for being "vindictive" and "callous". These characteristics, (you described yourself as having) are not Aspergers traits and you are an insult to others with Aspergers.

You came here, having free rein with your insults and threats and accuse us of attacking you!
Take yourself out of this situation where you feel you're being attacked, or take a chill pill before you give yourself a heart attack.
Unless you're enjoying yourself here.

Anonymous said...

I am not brain damaged, and if you utter that slanderous remark once more I will start proceedings to sue your arse off, Best. And don't think I can't do it either. I have a genetic disorder - and so does your son. Stop lying. You know you are, and so do the sane people who read this blog.

As for you, Jon's Mum, I have every right to defend myself and every other ASD person - including Michelle who has more sense in her pinkie finger than you have in your whole body. At least she can see what's going on. You can as well but you don't want to. And being callous or vindictive IS an Aspie trait - when provoked by the same behaviour. You are being callous towards your son, and when I brought that to your attention your vindictive response brought the same reaction. Treat a person the way they treat you.

I don't need a chill pill. I'm the one that's cool, calm and collected. If I wasn't I'd be swearing my rear end off - and I have not uttered one of those words in my time here. And I am not taking myself out of this situation - because it needs to be rectified for the sake of the safety of all ASD adults to which this blog poses such a threat. I have already begun the action (I won't say what because I'm not giving you any time to prepare for it) and when I'm done you will look like the failure you are as a mother.

Same for you as a father, Best!

Fore Sam said...

Phil; What is the name of your genetic disorder? Is it fragile X? Is it the APO-E4 protein? Is it just plain stupidity?
All autism is some form of brain damage. That's why the diagnosis exists. Sane people accept that fact, Phil. I'm very scared that you might sue me. Do you care to make any other idiotic threats tonight, goofball?

Jonsmum said...

Phil Gluyas;

Your "actions" in other areas have all failed.
10/10 for effort but 0/10 for achievement.
When will you get the message, your perseverance is getting you nowhere.
You're enough to give a paracetamol a headache!

Anonymous said...

The name of my genetic disorder is Aspergers Syndrome, Best.

And Jonsmum, how do you know my "actions" have failed when you don't even know what they are, hmmm? Assuming too much - again are we? I've heard nothing back from them thus far (I checked my email before typing this) so if you were right I would have heard something.

And I'm glad I'm giving you a headache, because bluntly you deserve it - failure.

Fore Sam said...

Phil; You've been misdiagnosed. There is no such thing as Asperger's. It's only a mild form of mercury poisoning. In some cases, it's simply being a nerd.

Anonymous said...

Well that just proves how stupid you are. I have the backing of FIVE psych's on the DX of Asperger's. And don't you even suggest it doesn't exist! What are you, a medical school drop out with delusions of grandeur? You must be the way you're talking!

Anonymous said...

HAHAHAHAHAHA!!!

I just picked up this gem. Read it THOROUGHLY and weep you lot!

http://www.mcg.edu/news/2002NewsRel/Casanova.html

Anonymous said...

Sorry to jump into this, guys, but your mudslinging each other makes for addictive reading. What began with autism has gone on to become a free for all wrestling with words.
I have, for some time now lost all faith in doctors and pharmaceuticals and their profit driven motives. I feel lay people, and especially those not in the medical field can speak more honestly – simply because they do not experience the financial pressures doctor find themselves in. After all, all that expenditure in costly medical schools has to earn dividends. This profit motive is what keeps their mouth shut.
I see here in India, school children being forcefully inoculated, its scary, to say the least. Here is another link on vaccinations to reflect upon.
And peace… we’re all in the same boat!

http://www.uow.edu.au/arts/sts/bmartin/dissent/documents/AIDS/

Fore Sam said...

Anon; Psychologists are pseudoscientists. They don't know anything, they only make guesses.

Fore Sam said...

Anon; This guy, Cassanova, admits he's just guessing that these minicolumns are an evolutionary thing. He doesn't guess about the cause.
Richard Deth explained the cause. Please read his work.

Jonsmum said...

Sanjay;

Thankyou. You're opinion is appreciated.

Anonymous said...

Sanjay,

Sorry that we have poisoned your kids there. As a citizen of the US, I am ashamed.

megan said...

help me someone!! my old man, kevin leitch, is poisoning me again with some loud playing of heavy metal music. It's mercury waves all over the apartment now! And my mummy is dead after being forced to eat her 17 amalgam fillings. If just someone could call the freakin' police and put this pharma shill behind bars I could perhaps manage to cure myself with intensive Lupron therapy.

Fore Sam said...

Megan; Did you know that your father said he'd try to cure you if you asked him? Pull the plug on his computer so you can get his attention.

Anonymous said...

Psychologists are pseudoscientists. They don't know anything, they only make guesses.

Oh nice try, Best! They were five PSYCHIATRISTS! Not psychologists.

This guy, Cassanova, admits he's just guessing that these minicolumns are an evolutionary thing. He doesn't guess about the cause.

He presents a feasible option, and like the idiot you are you don't want to know. The articles states that the minicolumns have NEVER been examined before in this manner, and that includes the people you hold dear - like Richard Deth. The practical facts of the examination are crystal clear - the minicolumns are DIFFERENT in Autistics, and different not in a damaged way either like you think. Casanova knew that, and hence the EDUCATED guess that it was evolutionary. More educated and certainly more qualified (as a neurologist) than you or any of your heroes!

Sanjay, as much as it is not good to hear about vaccines being forced - the article you linked to is flawed. The accepted (as far as I know) cause of AIDS is the disgusting actions of certain Europeans who engaged in flagrant bestiality with monkeys in Africa. It was probably about the time referred to in the article (late 1950's), but it had nothing to do with vaccines. It's why the anal nature of those actions ended up reflecting on male homosexuals - which is flawed in itself because heterosexual couples have been known to engage in anal intercourse also. Polio has been successfully controlled with no side effects - as I recall the "vaccine" for that was oral anyway. Sabin I think it was called.

Fore Sam said...

Anon; Did the shrinks check for mercury or fragile X? If not , they did a half assed job. They also guessed by not testing.
You put lots of faith in guesswork. I think the minicolumns were larger due to the autistic brains having to work harder in certain areas to bypass the damage caused by mercury. My opinion is more valid than Cassanova's because Deth's work is a proven fact.
I suppose if you examine Michelle's brain, it will resemble that of a monkey because she thinks like a monkey. You may have a better chance of proving your evolutionary theory with that.

Jonsmum said...

Sanjay;

"Here is another link on vaccinations to reflect upon.
And peace… we’re all in the same boat!"

Brilliant link! Thanks.

Anonymous said...

The accepted (as far as I know) cause of AIDS is the disgusting actions of certain Europeans who engaged in flagrant bestiality with monkeys in Africa. It was probably about the time referred to in the article (late 1950's), but it had nothing to do with vaccines.

We all understand that it is much easier to blame the "flagrant bestiality with monkeys in Africa" for the start of the AIDS epidemic but there is a lot of information which actually explains how, in fact, it is equally plausible that the start of AIDS came from contaminated Polio vaccines. Of course, no one wants to touch that subject with a ten foot pole so they just throw their hands up and blame it on the sickos having sex with animals. Sure....

http://www.bmj.com/cgi/content/full/320/7247/1481/a

A.Taylor - Solicitor said...

Jonsmum, or whatever your real name happens to be. Please remove the full name of the anonymous poster immediately. It is an invasion of privacy and attracted the other anonymous poster on the thread entitled "Michelle Dawson - The Missing Link" in which he referred to aforementioned person as a "tosser". This would have been caused by Googling the full name.

Anonymous said...

Thanks, Andrew! :)

Best, if Deth's work is proven fact, why is it being ignored? And don't give me the usual argument about cover ups and so on because that's a cop out. I'll tell you why - because it hasn't been verified! By people who KNOW! You don't know. OK neither do I, but the point is that if there is no verification there is no FACT! Your experience and mine clash - and the reason for this is that I have sought knowledge across a much wider area than you have.

I am Aspergers. Five psychiatrists can't be wrong. One maybe, but not five. And the psychiatrists here have the sense to KNOW that with such a diagnosis any other testing is not needed. Don't forget that Australian doctors are not influenced by overseas loudmouths, because the malpractice laws here are much stronger than they are in the US. There is no guesswork - the DSM-IV is all that is needed, and I fulfilled that to the appropriate level.

And now you're a neurologist with that observation about micro columns? Yeah right! Get off your soapbox and shut up!

Re the link from another anon - the extract openly admits that the theory is pure speculation based on non medical issues, and has been previously "rubbished" by the scientists. I pay it no heed for that reason. And given that it was blasted at a time when scientists were still trying to understand HIV and AIDS (1992) I think such a reaction says that they looked at it fully in the search for understanding and kicked it to the kerb.

Fore Sam said...

How can an anontmous poster break any sort of law by commenting on something said by another anonymous poster?
The psychiatrists are all wrong if none of them have bothered to address the cause of the Asperger's. Maybe you wouldn't be a tosser if you could find a doctor to help you.
DSM only addresses symptoms and it misses lots of them.
Deth's work is verified by every kid who improves with methyl B-12 and every kid who is cured with chelation. My kid's part of that proof. If you had a brain in your head, you'd make yourself part of it too.

Jonsmum said...

A.Taylor Solicitor;

I would like to draw your attention to the following comment by Phil Gluyas:

"Anonymous said...
OK - I guess it's time for an ID.

http://www.philsworld.com.au"

As a solicitor you must be aware that by providing the above link to his site, Mr Gluyas voluntarily provided all readers of this post with a direct link to his full name and personal details.

At this point the aforementioned relinquished any privacy his anonymity would have afforded him had he not provided this information.

Thereafter, any comments addressed to "Phil Gluyas" do not constitute "an invasion of his privacy", and further anonymous comments would not have been attracted by googling his full name, but by linking directly to his website.

Anonymous said...

Wrong, idiot. I just googled my name right now and it came up!!

Besides, the use of a full name is accepted as an identifying detail. Unless I presented it myself (and linking to my website does NOT constitute this) it was done without my permission and is therefore an invasion of privacy!

REMOVE IT!!! Or I'll have Andrew take further action.

Fore Sam said...

Hey guys, It's been a long day of handicapping races. I can't make any sense out of which anonymous is who and i don't care. Pick a pseudonym and make this easier , will you please.

Fore Sam said...

Phil;
I've learned that it was not a 16 year old kid who made a comment to you. You need to stifle your paranoia. Threatening legal action over anonymous comments is not very bright, Phil.

A.Taylor - Solicitor said...

I require you to email me the details as to how you became aware of this, sir. Phil would be on the road right now.

ataylor@phreaker.net

Fore Sam said...

No solicitors allowed here, pal. LOL require this.

Anonymous said...

I haven't been completely following this thread but am I to believe that Phil is now upset that his last name has been mentioned here even though he linked to his site on which his full name is completely visible for the world to see? Are you kidding me? Dude, get a grip. What's your problem? You put your name out there it's not as if someone had to do some super sleuthing to find out your full name. It was as simple as a click on the link which YOU provided. Leitch is the master of the super sleuthing to find out the identities of people who would rather remain anonymous. Here, we just follow links and walllah ... there you are....

Anonymous said...

Wrong!

Certain people have had their IP's banned from viewing my website - which prohibits the viewing of my full name. That includes this person who is stalking me. Now because my full name was placed here - withOUT my permission - that security measure has been breached. Therefore, my privacy has been invaded.

I'm giving you one more chance. Get rid of my full name. If it's still here in 12 hours time, I will be taking action.

(Thanks for trying, Andrew - a fat lot of good it did, but it's not your fault. See you Tuesday!)

Fore Sam said...

Anonymous; It would take me a very long time to remove every "Anonymous" that is on this blog. Which "Anonymous" are you?

Kevin_1000 said...

Phil Gluyas,

Why don't you take out an intervention order against everyone on this blog, or better still don't come on and then you won't have to listen to the truth.

You seem to be very familiar with intervention orders. Sounds like your face is a bit of a fist magnet!

Fore Sam said...

I just put up a brief post on Phil Gluyas. Maybe we can consolidate the discussion there.

Anonymous said...

Dear Phil,
I am the one who wrote to the CDC about "Coming Clean" as to what was known in the scientific community about the use of hg in childhood vaccinations, the evidence that it posed a health threat, and the decision to cover it up rather than address the problem. I referenced the Simpsonwood meeting because I have gone over the statements recorded in the meeting, as I hope you have, and I am convinced that these men and women of science were aware of the danger in allowing a known neurotoxin to be used as a preservative in mandatory childhood vaccinations and failed to report it to the public.

I took the time to read your website. You are obviously a creative and intelligent man. But I can't help think that you are bitter. Bitter that your life has been so difficult, bitter that there has been no magic potion to cure you of your disorder and bitter because while you have lost hope for yourself many parents like myself refuse to lose hope and continue to fight for our children.

I want to be clear about one thing. I do not believe my son suffers from autism. I believe he has traits similar to autistic
individuals. However, his sudden and unexplained onset of symptoms after a normal devlopment over four years, combined with the striking similarities of his syptom complex to documented cases of individuals poisoned by exposure to mercury, makes me think that there is a link to the vaccine and his developmental disorder.

Your posts that suggest parents looking to blame the government are "lazy" could not be further from the truth. These parents are the heart and soul of this movement who work tirelessly day and night caring for the children that have been harmed and trying to put a stop to any harm needlessly coming to any other child. I can only speak for myself but I am not lazy. I am lucky to get four hours of sleep a night.

I don't think you can appreciate what it is like to watch a child grow up and hit all of his milestones (first word, discovering his or her toes, standing, walking, and talking) and suddenly lose those abilities. It made no sense to me and I felt that there had to be a trigger. That trigger was the injection of known neurotoxins in his body before and while his immune system was developing.

I'm not looking for fame, name recognition or anything for me. I want someone that was at that meeting to think hard and long about what was said. I want them to review their notes. I want them to think about what mercury can do to a devloping immune system. I want someone at that meeting to step up and say "we knew".

After that all I want to know is if something can reverse the damage. My son and I have been through so many different treatment modalities, including some you advocate. I have seen better results from biomedical interventions and I will continue to press forward with my goal to bring this information into the public domain where it can be discussed openly. As opposed to it being kept in secret among 51 attendees at a retreat set up on short notice.

I wish only the best for you and I will hold out hope that there is treatment that helps you.

Fore Sam said...

Russel; Very well said but I don't think Phil will listen.

Phil said...

Russell, I will answer your post because you are coming across a darn sight better than Best is. You aren't - as another poster put it elsewhere here - bullying me.

Firstly - when I spoke of laziness, I was referring to lazy thinking. Not a lack of physical action (heck no!). You're putting your heart and soul into something you believe. But where I have the issue is how you came to that conclusion. Someone else queried Best's medical qualifications. It's a good point, because such an assertion (that this is the answer to Autism) requires back up. And it's not coming and yet people like Best continue to howl it.

You refer to me as bitter. Well, I'll cop that because there are a number of mitigating factors. For a start, I wasn't DXed with Aspergers Syndrome until I was 32. Way too late to do anything about it - and meanwhile (as you would have seen on my website) I was subjected to a large amount of negativity which to this day remains unresolved - and not likely to be resolved.

My main issue with Best's line is that it will stop the chance of funding for the special needs of people like myself who lead different lives - severely limited in the social sense. I've been battling for this for years - and I'm not the only one.

I really take umbrance to the insinuation from parents in this position that they want their child to be normal. They see the pain - yes it's there. And they want to stop it. That's fair enough. But I'm in the world of the ASD, and I can tell you that what they want is routine and autonomy. They want to be left alone. Now, Russell, you believe your son is not Autistic. That's good - that means you don't neccesarily subscribe to Best's line. What concerns me with the children is that they aren't being heard properly. The interpretation of what is causing the pain is not correct in all cases. I hope you understand what I am saying here.

There are positives to having an Autistic Spectrum Disorder. It's about time governments utilised those positives. Going down Best's suggested line will destroy those positives, and in the case of adults like me destroy lives. I won't let that happen.

And I add to you - my grandfather was DXed with Aspergers Syndrome just two years before he died. He was born well before 1931. My father has it as well. It's why I stick to the theory that ASD's are genetic in origin and are shaped by environmental factors. I hate to think what will happen when Best's boy Sam hits his teen years. But that will depend on his upbringing, and not on the treatment he is undergoing.

(And I'll even tag this, for Russell. Hope I didn't miss anything)

Russel V. Mancino said...

Phil,
Thanks for the feedback. I am sincere in wishing you the best.
I hope things get a little easier for you -- the same way i hope they get easier for my son. I know you can appreciate that. Take care of yourself.

Russ

Anonymous said...

It's why I stick to the theory that ASD's are genetic in origin and are shaped by environmental factors.

I'm confused here Phil... Many of us have been saying this EXACT same thing here. There is a combination of genetis here with an evironmental trigger or "shaped by environmental factors" if you will. Many believe that vaccinations and/or specifically mercury are the likely environmental factors of which you speak. Where do we lose you?

Phil said...

You lose me because the claim is that mercury poisoning is the sole cause of ASD's. Environmental factors shape the initial disorder which is present at birth - it is entirely dependent on upbringing, which can vary heaps. Vaccinations have nothing to do with it - that's a different "environmental factor" entirely.

And besides - it has been noted that mercury poisoning cause brain damage. That could only be remotely possible in low functioning Autism - not in any other ASD.

I will say that there is a chance that chelation may slightly improve low functioning Autistics - IF it was mercury poisoning that did the additional damage. But it will NOT cure the disorder lock stock and barrel. That's the key. Understand?