When I learned that mercury from vaccines was one cause of autism 8 years ago, I foolishly thought the Government would remove the mercury from all vaccines and the epidemic would be over soon. I thought this information would certainly lead to our politicians demanding that all health insurnce would pay for autism treatments.
I never thought that in 8 long years, the only thing that would change regarding autism is that the size of the Autism Mercury Yahoo group would keep growing. With tens of thousands of children affected by autism, almost 7,000 people had found that Yahoo group and were trying to cure their children.
Where are the rest of the parents of autistic children? Are they all stupid enough to do nothing but take the advice of teachers and psychologists who will not help to cure autism?
There are DAN doctors but they are only for the wealthy. Insurance won't pay for them so most people can't afford them. I wonder how many kids are being treated by DAN doctors. It must be a miniscule number or we would hear about it on the news.
If Defeat Autism Now(DAN) was getting the message out, one would think that the majority of parents would be aware of this treatment and every parent would be advised to seek help for their autistic child from DAN. That is not happening.
There are almost 7,000 people who are learning to chelate their kids for free with the help of Andy Cutler and the Autism Mercury group. There are well over 100,000 others who are not learning how to help their kids.
We have a group of nitwits known as Neurodiversity who are against helping autistic people. They are getting their message out and they are converting unintelligent parents to their idiotic viewpoint. The people who know what caused the autism epidemic and know how to cure it are not doing much of anything to spread that message. They waste their time with politicians and bickering amongst themselves.
One man who formed Generation Rescue and put his own money into advertising the truth had the wonderful notion to educate the masses by organizing parents who had used biomedical intervention to help their children to share that knowledge. It doesn't seem that many parents are contacting Generation Rescue lately. Perhaps they ignore it after being deluged with propaganda from the medical profession with their claims that autism is all genetic. The medical profession, pharmaceutical companies and their friendly nitwits from Neuroinsanity are more than happy to tell unsuspecting parents that they should accept the autism and allow the schools to help their children as best they can.
The rest of the parents who know the truth about autism are content to bother politicians without ever spreading the word about what really happened to our children. The problem with bothering politicians is that they are all bought and paid for by the pharmaceutical companies. It is the same as the chicken asking the fox for help.
Along comes Autism Speaks with their message of raising autism awareness. They raised awareness allright. Now everyone has heard of Autism Speaks. Rich people like to give them money because they think they are doing something useful. Autism Speaks pretends to do something useful by tossing a bunch of money at genetic research. In reality, all Autism Speaks is doing with that research money is trying to manufacture some likely combination of genes that can be blamed for causing autism. This protects the real criminals from being blamed and prosecuted for their negligence.
Autism Speaks' bogus research also solves the problem of anyone finding out that thimerosal is absolutely the culprit. Since thimerosal is still given to pregnant women so that it can damage the brains of the fetuses, the autism epidemic will go merrily on its' way. All of the politicians, doctors, psychologists, teachers and naive parents will continue to claim that the mercury was removed from the vaccines. The wise guys here, the doctors, know that mercury can damage brains even better if the kids get it before they're born. This has the additional benefit of making the kids autistic at the start so parents don't become suspicious by watching normal babies regress. The vast majority of parents who lack a good education simply aren't smart enough to know that they should question the doctors. Some with some common sense may bring up the subject, get shouted down by alleged professionals and brain dead mothers who have bought the lie for 20 years, and forget about it. Meanwhile, those who know the truth keep jabbering in their private groups and bothering politicians. Some of them are even dense enough to vote for an incumbent politician who, as we all know, is owned by Pharma.
No person who knows the truth about thimerosal should ever vote for an incumbent, a Democrat or a Republican. The only way a politician will attempt to change anything is if he is not owned by a major party or Pharma.
Bob Wright and Autism Speaks will never tell the truth about thimerosal. Even though Mr Wright's grandchild has apparently been helped by addressing mercury as the cause, he will not enlighten the masses as to that truth. Instead, he is making sure that Pharma profits while the working class autistic children are doomed to their horrible existence. He simply does not give a damn. He won't help inform the uneducated masses that a crime has been committed against their babies. The media won't help. They will not report what I am writing here. They are bought and paid for by Pharma just like our politicians. And, the saddest thing of all, the people who know the truth and want to help children are trapped in the Circus of trusting their politicians. They will not learn of the free press that exists with blogging to send their message of truth to the masses. They have the numbers to support a blog that would be on the first page anytime anyone searched for anything about autism but they are content to bitch and moan in their private groups while Neurodiverse nitwits make them look foolish in public.
Neurodiversity is beating the shit out of decent parents who want to help children. Autism Speaks is beating the shit out of decent parents who want to help children.
Pharma is beating the shit out of decent parents who want to help children.
Decent parents who want to help children can beat the shit out of these bastards if they will get off their private groups and get their message out to the general public. Blogs are a powerful way to send messages. Just ask Kevin Leitch who is beating the shit out of decent parents who want to help children.
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194 comments:
Thank you John for getting the word out. You are a man who truly is driven to get the truth out. You take a lot of shit here from people who do not like your opinion and come here to bash you for it.
I know you'll be here as long as it takes.
Your welcome.
John,
When my son was diagnosed 6.5 years ago it would be another year before I became convinced of the thimerasol connection. I have one of those groups that you referenced in a very unflattering manner. That is not why I write this comment.
I write because I believe that individually we may only be able to make a small difference but collectively it can be enormous. For example, I am educating my daughter's friends about the dangers of vaccines and allopathic medicine in general. I sincerely believe that in order to stop the insanity we have to reach the next generation that is coming up. I also have several friends that are pregnant now and I am supplying them with books like Stephanie Cave's "What Your Doctor May Not Tell You About Childhood Vaccinations", “Mercury the Winged Messenger” and of course David Kirby’s “Evidence of Harm”. Again, it goes to my thinking that in order to correct this problem we must reach this next generation into thinking “outside the box”.
As to the stupid people not taking any action; stop and think about the cost of intervention. Intervention; that is NOT covered by insurance (at least in state of PA). Most families of these children (and I know from experience) are not financially well off. Our son’s one treatment (TD-DMPS) costs us out of our pocket about $120.00 a month and neither my husband’s work provided insurance (Aetna) nor my son’s Medicaid will cover it. Add to that the cost of his other bio-medical interventions (another $200 to $300 per month) and it’s very easy to understand why some parents aren’t doing anything. They can’t afford to.
We are doing everything we can to help our son, but I fear it will never be enough. Your post just reinforces my feelings. Thanks for ruining my day. :(
Deborah, I don't have anything against the groups. It's just that the message everyone in those groups would like to see be known by everyone isn't getting out. If the discussions that take place there were out in public, it would do more good.
Do some searches for autism and you will always find neurodiverse nitwits at the top of those searches. We outnumber them by tens of thousands but they are doing a much better job of having their idiotic message heard.
John,
I do what I can and I don't know what else to do. I have my group, my website and now my own blog. I pay for my website but have very little money left over for placement on search engines.
Maybe that is what the neuro-diversity folks are doing. Paying for the placement. The same practices as the drug cartels and their killer products.
DEB
Deb, The neuronitwits don't have to pay for placements. They support each other with their Autism Hub of blogs and that gets them bumped up to the top of the search engines by popularity. I could be wrong and Pharma might be paying for placement for some of the nitwits.
Anyhow, those of us who know the truth about mercury could do the same type of thing. We would need someone with Kevin Leitch's computer expertise to organize and implement it.
Oh so my post got deleted did it?
You lying bastard.
Hi, John...
I am very new to your blog. I have boy-girl twins turning 2 next week. My daughter Miranda (according to neurodoc) is showing some "behaviors of concern" but not enough for her to diagnose as autistic. She's quiet, sweet, loves to hug (rarely on request--when she wants to--much like a cat), hypermobile, loves stacking, puzzles, intelligent but aloof...seems to not hear when her name is called however, the word "bottle" even whispered always gets her to come immediately (so we know she's not deaf). A confounding variable is the mild global hypotonia she was born with (mild CNS issue...could really be the reason she doesn't talk much yet...but she starting 3x wk speech therapy next week). She may be on the spectrum in a mild sense or she could have a quirky personality...I have read so many sites. There are myriad viewpoints and I can understand all of them (including the neurodiversity movement you hate)...I'm the type to be able to see both sides of an argument and you all have such valid points... making it difficult to determine which direction to take...Have you read the link below (bottom)? I just came across it after reading your latest post. I am trying to determine if chelation would, indeed help or harm...? Has chelation truly made a significant difference in your son? You have lamented how parents do little or nothing...I think part of it (at least for me) is the uncertainty of knowing which direction to take...The experience of having pediatricians tell me for so long that there was "nothing to worry about...preemies need more time" hasn't helped either...
http://www.quackwatch.org/03HealthPromotion/immu/thimerosal.html
Miranda's Mom; Have you contacted www.generationrescue.org? They can tell you about competent doctors in your area.
Chelation has helped my sons a lot.
Fore Sam -
Thanks. I'm going to look into it ASAP. SonS? I didn't know you had TWO...I don't know if she is autistic...I know when (if??) she says words I'll be relieved. She's still only 2 and I myself didn't speak until 2 1/2 yrs of age. I may be jumping the gun...I just want to be prepared in case my gut feeling turns out to be right...Thanks again.
Miranda's Mom;
Here's the link for Andy Cutler's protocol that you will find in the files section.
http://health.groups.yahoo.com/group/Autism-Mercury/
A hair test for deranged mineral transport is one way to check for mercury. DAN doctors like to try challenge tests which use too much DMSA at one time.
I have one autistic son and another who has been cured of ADD.
You wrote:
"Bob Wright and Autism Speaks will never tell the truth about thimerosal. Even though Mr Wright's grandchild has apparently been helped by addressing mercury as the cause, he will not enlighten the masses as to that truth. Instead, he is making sure that Pharma profits while the working class autistic children are doomed to their horrible existence. He simply does not give a damn. He won't help inform the uneducated masses that a crime has been committed against their babies."
And for that, you'll be hearing from my attorneys. You've just committed libel, you foolish little man!
Bob Wright
Thank you Neurodiverse nitwit.
"And for that, you'll be hearing from my attorneys. You've just committed libel, you foolish little man!"
ROFL
You know, its fairly obvious to me why this 'neurodiversity' bunch don't want a cure found for autism
(and sorry Fore Sam, your crazy pharma conspiracy doesn't cut it, its about as batty as Amanda Baggs herself).
Its very simple:
A cure would have the effect of eradicating them alright, but not the way they'd have you think.
A cure includes a cause, and as soon as you find a cause, you find a way to easily identify who's got autism and who doesn't, thereby proving the whole bunch to be the frauds that they are.
Its very unfortunate that doctors go around slapping 'Aspergers' at every uptight self-absorbed narcissistic personality-disordered adult prick who wanders in their sights for 'treatment.'
It may get the prick patient out of the professionals' offices but it unleashes shit onto the world such as we're seeing now. Not to mention that it doesn't do those who actually HAVE Autism or Asperger's any favors whatsoever.
Now "uptight self-absorbed self-rightous obnoxious whiney prick bastards' is pretty much becoming synonymous with "Aspergers" -- sorry to the kids who actulaly have this disability -- by the time you grow up in addition to your disability to deal with, you are going to have this stereotype currently being created by these assholes to contend with (as if you won't struggle socially enough as it is -- thank "Neurodiversity' and the professionals who would rather create this collective monster than to deal with these ugly patients for what they are).
As soon as a cure (including that proper cause) is found, we should see a substantial reduction in these loudmouths -- particularly one Amanda Baggs.
Nobody needs to touch a hand to any of them, no needles, no medical procedures required, simply prove with finality what they are and what they aren't and that's how you 'kill them off' without ever laying a hand on them, nifty isn't it?
Its also the truth they won't tell you but THAT'S what's going on, that's how 'curebies can kill the [[psuedo] autistic.' In fact its not even Curbies that they fear, hell its more accurate to say that the 'Causies' even are in fact what they fear most.
Finding a cause/be able to prove one's lack of 'autism' would have an effect on this bunch not a lot unlike spraying a can of Raid directly into an infestation of cockroaches.
Bring it on, the sooner the better.
Neither I or my child had thimerasol. We had the whole family extensively tested, and there was no heavy metal poisoning. He doesn't have "leaky gut." GFCF made him worse, not better. Now what?
I have no doubt that thimerasol and other vaccine reactions are corrolated to autism. We now know lots of families touched by autism, and many of them include cases that seem quite clearly linked to vaccines. But not all of them. In fact, not even a majority of them; but being anecdotal, I can't say for sure that this sampling is adequately random. I can say that the majorty of families we know, like us, carefully avoided mercury and thimerasol in particular, and had children who we now know were autistic from birth. We are unusual only in that we dont have a family history of anything that could be now thought of as autism or mental illness; most of the other families we know, do.
Until people accept that there are multiple causes- and treatments- for autism, you are correct. There will continue to be more and more autistic children, since we will still have no way of preventing it, and little ability to educate and support those who have it.
Your point re: the children of the working class is well made....it's great if you can afford a DAN Dr. who will possibly help to improve your child's quality of life but for many (like our family) we just cannot afford it. (I also left a comment on one of your earlier blog entries but only just came upon these more recent ones.....).
Many thanks for your response to me on the other comments page; I do appreciate it!
MaryAnn
Why is it so wrong to want to be autistic that you call us nitwits? Why should I have to be anything other then autistic? And can someone please explain to me why specific genes are being found to cause autism if it all mercury? Also why are autism rates continuing to rise as there are less mercury vacanations (1/166 to 1/150, quite a rise when you really thing about it.)
Why is it so bad to want to be autistic that you insist on insulting us? It is sad when you can watch X-Men and identify with the "bad guys" because you know how badly normal people can be do what they do not understand. In the words of Mystique, "It is people like you that made me afraid to go to school as a child."
On another note why are specific genes now being found to cause autism, is it your theory that those genes make one more resisit to mercury vacinations then others? Also why are autism rates continuing to go down as mercury is gradually being pulled out of vacinations (1/166 to 1/150 is quite a jump.)
All me and my neurodiversity crowd want is for us autistics, and all future autistics, to be treated with respect and dignity. Is that really such a bad thing or do we need our own Genosa (sp?).
Endersdragon, Autism rates continue to rise because the mercury has not all been removed from vaccines.
Maybe all you, yourself want is to be treated with respect and dignity. The loudest of the neurodiverse nitwits are desperately trying to confuse the issue of autism to the benefit of the drug companies who caused the epidemic. As I've said many times, if you are a follower of neurodiversity, you are very naive. Neurodiversity exists to use autistics against themselves by idiotically claiming that they want to be autistic. No person who has never experienced normality can sanely claim that being autistic is a better existence. It is not a better existence for my severely disabled son.
Neurodiversity further tries to muddy the waters by having people with Asperger's claim to be autistic. This doesn't do anyone any good. All it accomplishes is to have two sides at each other's throats.
If you want respect, you should disassociate yourself from Neurodiversity, Aspies for Freedom and any other jackasses who would like to prevent us from helping severely disabled children.
I love how you totally avoided the question of genetics. Maybe if you can show me cases where both genetics and a material cause a disorder I will drop that arguement.
Also most neurodiversity folks I have ever met want to be treated with the respect they deserve. You see there is no neurotypical hiding out underneath the autistic. Your son is autistic, that is all he is, that is all he will ever be. You CAN NOT love an autistic while hating autism. That does not work! That makes me feel so sorry for you son, I know what its like to grow up with parents who hate what you are.
From what I have seen with most studies out there is that they have come up with the results they desired. I have not seen any strong evidence either way. Show me a study done that shows support for this conclusion, that did not set out to try to show support for this conclusion. And please do try to explain away the genetic causes of autism.
P.S. I am quite happy being autistic and I am wondering how you seperate aspies from auties. The only serious difference in the way the are diagnosed is the language delay (which appears in quite a few other disorders besides autism). If mercury caused this this this and this in one child isn't it also likely to cause this this and this in another. The only reason being autistic sucks is because of those that hate autistics, aka you.
Dragon, The genetic cause of autism is the APO-E4 protein which determines that that person can not rid his body of metals. There is no other genetic cause.
The reason I hate autism is because I love my son. If I didn't have an autistic kid, I would just feel sorry for all of you.
The only babies born with autism are those who are poisoned with mercury in the womb through the mother's dental amalgams or her vaccines with thimerosal. You've been fed a line of bullshit all your life about there being no known cause or cure for autism. They know the cause. They know who caused it and the criminals who caused it will not admit their guilt. If I were you, I'd stop listening to the assholes at Neurodiversity and find myself a lawyer to sue Eli Lilly for all that you can. If Neurodiversity gave a damn about autistics, they would be giving you the same advice. If there is any aspect of your life that might be better if you were not autistic, you should be made whole by the people who caused your autism through their negligence of never testing thimerosal for safety.
I hope you take this advice and pocket a few million from Eli Lilly instead of hanging around with neurodiverse jackasses whose only real concern is making the drug companies look good. Time to wake up to reality, kid.
I see its no use arguing with you but one other question. If ALL autism is caused by vaccines why does CDD (which is a PDD) not show up until well after they are given their first vaccinations, generally around the age of 2 or 3. Or is CDD not really a PDD. Also please show me studies backing up your theories that didn't set out to back them up.
Dragon, Your reply tells me that you are a full-blooded neurodiverse nitwit. Only a nitwit would argue with someone who told him how to pick up some easy money. And, only a coward comments anonymously.
Lol your the one who is saying that all cases of autism is caused by mercuy but can't explain away CDD (and probably not Fragile X either). I don't get that.
P.S. I don't think autism is a bad thing... I like being autistic... why would I want to sue someone over something that I feel was a good thing...
Dragon, Fragile X isn't autism. That's why it has the name fragile x.
Why don't you tell me what your autistic symptoms are. You probably have Asperger's like the rest of the neuronitwits.
If you've never experienced normality, you aren't qualified to decide how good or bad autism is. If you're over 18 and your parents did not ask for guardianship, you aren't autistic.
Your son is autistic, that is all he is, that is all he will ever be.
Learn to live with it? Yes, that's basically what parents are told while medicos fill out a prescription for psychotropic drugs. I'm glad I decided to go the alternative route and tried biomedical interventions, diet, and therapy for my son. He started to lose his autistic behaviours as soon as we addressed his underlying medical issues.
I don't think autism is a bad thing... I like being autistic...
Good for you! I have no problem with adults who say they like being the way they are, so long as they don't dictate what parents can and cannot do for their children with autism.
On the subject of genetics, not all children with FXS have an ASD. 75-80% don't, so what's different about those who do? Are they vaccinated? Do they have the APO-E4 protein? Has anyone bothered to find out?
Also why are autism rates continuing to go down as mercury is gradually being pulled out of vacinations (1/166 to 1/150 is quite a jump.)
You are behind the times! It's 1 in 100 in New Zealand and 1 in 86 in the UK, and that's without FXS, Retts and CDD to bulk up the numbers. In Europe, these are considered "separate conditions with some related symptoms".
It's my belief that the number of children being diagnosed has increased due to screening which began around 2001-2, and which, I believe, was a very clever ploy.
Now 12 month olds are being diagnosed with autism, speech-delayed 18 month olds with atypical autism, 2 year olds with atypical Aspergers, and shy, studious adolescents with Aspergers, and these have all been included in the "Autism" rate.
If ADHD is eventually included in the spectrum, as some clinicians have suggested, the rate of Autism would skyrocket overnight to around 1 in 8 children.
"Autism" rates post 2002 are meaningless unless the subgroups are clearly defined. If children with speech disorders, and some mild symptoms, children with RAD and FAS are being included, and they are, it's not surprising that the rate has continued to increase since the removal of thimerosal from most vaccines.
At the moment, there appear to be huge numbers of people claiming to be autistic, or to have autistic children - and, strangely, many of them seem to be gifted. No one was talking about gifted children with autism in the 90s.
And no one was celebrating neurodiversity.
my friend who uses the tag endersdragon asked me to come on this site and tell you about myself and my son. After reading the discussion yesterday I can see why. I think you would describe me as a neurodiverse nitwit. That is okay everybody is entitled to their opinion and I applaud that it takes everyone to make a world and my young friend I think knows that because I find him to be very intelligent.
I realize that people who are struggling with with seemingly with lower-functioning autistics who haven't found their voice are frustrated. However we people who have found our voice do not appreciate being called nitwits.
I have been on my journey in this area for the last 14 years. My son was born in 1990, and I started the diagnosis journey in 1993 in Medicine Hat, Alberta which is fairly close to the middle of nowhere.
He was diagnosed autistic, in 1996, I was diagnosed aspergers in 2003. We would both be considered high-functioning. I have learned a lot and my son have had a lot of conversations.
I have gone from thinking that I knew everything I thought my non-verbal son was thinking to realizing I didn't have a clue.
I am now very active in my community.
Diane, If you truly had something wrong with your brain, you would have been diagnosed as a child. Your late diagnosis is probably just a cry for attention.
Your friend is not very intelligent when he refuses to listen to information about the probable cause of his brain damage and the fact that he might collect damages from the companies who caused it.
Are you concerned about the long term effects of leaving mercury in your brain? Could it progress into early Alzheimer's? If that happens, you certainly won't be competent to make decisions for yourself. If I were you, I would investigate whether or not mercury caused the condition before your brain turns to jello.
fore sam if I may call you that I have my diagnosis from a psychiatrist and do not have to stoop to name calling which is verbal abuse. I feel sorry for you and your narrow view point something that my son and I experienced with my first marriage to his father. I sit on the community health council for our health region, the learning network board, the local library board, write letters to the editor that are often printed, run a mood disorders group with my husband, sing in the choir and and have a part-time job. My son although he could speak in sentences till 7 is now in grade 10 although suicidal because of the bullying behaviour you choose to display gets marks in a regular classroom ranging from 65 to 72.
He will go to college. I feel sorry for parents like you who choose to ghettoize your children. Just because someone is rocking in a corner and is non-verbal doesn't mean he isn't thinking wonderful thoughts.
Put that in your jello.
I have one more thing to say before I go. I think that the curebie attitude that I am that I am reading here is what is causing a lot of the austic spectrum disorder children to become suicidal and later adults. I know when Burt Bacharch's daughter Nikki daughter killed herself a few months ago. It affected me. She put her head in an oven and gassed herself. She was 40. She had had attempts before. Her reason of course not being accepted by society.
That is always reason when our children figure out they are not accepted by their peer group they start trying. My son first attempted at age 9. When people are accepted as viable human beings for their natural intelligence no matter what they look like on the outside no matter how they communicate. Maybe this will stop. This is the idea behind neurodiversity.
This is my fight. I fight for the life of my child. You may contact me at diburczyk@yahoo.ca
I will not come on this board again.
You two are too naive for your own good. Take a good look at Neurodiversity and ask yourselves why they spend so much time knocking everyone who tries to cure autism. They don't care if your kids commit suicide. To them, that is better than having them cured since cured kids are evidence against the drug companies while dead children can't speak.
I guarantee your child will be much happier and lose those suicidal urges if he is cured. By the way, the drugs they prescribe to "help" these kids are also causing suicides. You have a lot to learn about autism. For the sake of yourkids, I hope you stop listening to the assholes at Neurodiversity.
You stinking asshole, Foresam!
We don't want to see anyone commit suicide! Anyone! The reason why any of us commit suicide is because people like you abuse the crap out of us because you don't respect our right to choose!
You want the suicide rate to come down? Good! Stop abusing us - and you'll help!
But of course you won't - which makes you more uncaring than any of us! Chelation doesn't cure Autism. It helps some physical symptoms and that's all!
Your son will be suicidal if you don't stop hating Autism, sir.
Anonymous Cowardly Nitwit,
The only abuse you're getting is from the leaders of Neuroinsanity.
Autism is a nightmarish condition. Anyone not wanting to be cured of it is not competent to make that decision. If you're so sure of yourself, why not put your name here and submit yourself to a competency hearing?
Someday, maybe not in our lifetime, parents will be locked up for child abuse for refusing to cure autistic children. Until then, I'll just keep opposing the insanity that claims that anyone wants to go through life with the brain damage known as autism.
Please seek help.
fore sam honestly I do understand that you think that your son is suffering and I do not know what he is like why don't you tell me what he is like. I remember when my son was young he didn't talk but both him and I are passive. Some children can rage a lot because people don't understand their sensitivies.
Maybe if you talked to autistics and tried to learn from people who do communicate well you could help your son. We all love our children and want the best for them.
Just because we are comfortable with who we are and and are on the autistic spectrum shouldn't seem threatening to you.
So tell me what your son is like.
0h my goodness fore sam I have been reading your blog from the beginning. I put Hating Autism and found you all over the place. You are really too ridiculous for words. Well there is no use. Your set in your ways. It takes all kinds to make the world. Hopefully your son will grow up and set you straight. Children usually do in the end. Till then God bless. And if you only got 11 on AQ that means that it could have been genetic from somebody else in his gene pool. I'm sure your son wasn't cloned from you. You silly man.
I won't give you my name because you don't deserve it. Bullies are cowards and you are a bully. Autism is not brain damage. You are brain damaged. You are the one who needs help, Foresam. Desperately. Before you are locked up for not looking after your son properly. Accept Autism because your son has it for life no matter what you do.
Diane MacNaughton wrote:
I think that the curebie attitude that I am that I am reading here is what is causing a lot of the austic spectrum disorder children to become suicidal...
Do you have data to support that assumption?
I know when Burt Bacharch's daughter Nikki daughter killed herself a few months ago. It affected me. She put her head in an oven and gassed herself. She was 40. She had had attempts before. Her reason of course not being accepted by society.
Where did you learn that Nikki Bacharach had "put her head in an oven and gassed herself" because "she was not accepted by society"?
According to what I have read she died of suffocation using a plastic bag and helium.
Do you think she would have committed suicide if her eyesight had been better and she could have pursued a career in geology which she had been studying at Cal Lutheran University?
Her eyesight appears to have been the problem, and caused her depression, not her Asperger Syndrome.
That is always reason when our children figure out they are not accepted by their peer group they start trying. My son first attempted at age 9. When people are accepted as viable human beings for their natural intelligence no matter what they look like on the outside no matter how they communicate. Maybe this will stop. This is the idea behind neurodiversity. This is my fight. I fight for the life of my child. You may contact me at diburczyk@yahoo.ca
That sounds very emotive.
If, at the age of two, your son's brain had been damaged, would you have fought to restore his brain function, or would you have celebrated his neurodiversity?
John, it seems to me that a lot of mentally ill adults get a diagnosis of Aspergers because they need it.
http://health.groups.yahoo.com/group/AS-and-Proud-of-it/message/42782
Watson, I looked at that group. It seems there are a bunch of them who were diagnosed as adults.
The strange thing is that they knew they were screwed up enough that they wanted that diagnosis but they just don't have the brains to try to fix the problem. It would be like a bunch of people with broken legs wanting to celebrate riding in wheel chairs instead of fixing the fracture.
john you don't seem to be putting my posts on anymore even though I changed my mind about posting on your blogg. I am do get emotive because I have emotions like all people on the ASD. A lot of people on the ASD in adulthood will develop mental illness because they have deal with NT's and the world they live in. My bipolar was triggered by phen-fen.
This is my son's poem that he wrote when he was in school in grade 7 and coping with bullying.
Uncool and Proud of It
I am uncool and proud of it.
I wonder why everyone thinks being uncool is bad.
I hear the names they call but I don't really care.
I see cards of magic: the gathering.
I want to be alone.
I am uncool and proud of it.
I pretend to be someone that you'd don't know when you call my name.
I feel no pain, when you call me names.
I worry if you notice me.
I cry when I'm in pain.
I am uncool and proud of it.
I understand coolness is wrong.
I say you're all coolness freaks.
I dream that someday there will be peace.
I try no to be noticed.
I hope the world would be better without cool.
I am uncool and proud of it.
Now he is in grade 10 and because he made an inappropriate answer to a friend, a thought about hanging himself this week.
He says the negative comments about autism have finally gotten to him.
John Best if that is really your name this is the impact that you have on society.
Accept it. You are the coward if you don't
I'm sorry you did print my posts thankyou very much
Look lady, don't blame me for negative comments giving anyone thoughts of suicide. All I do is state the horror that autism is.
First, you need to realize that Asperger's is something else. It is not autism.
Second, you have got to stop listening to the idiots from Neuroinsanity. This whole horror show of ASD's was caused by mercury via thimerosal starting in 1931. Now that we know the cause, we can take steps to cure the conditions. Stop being foolish and get your son to a DAN doctor. In ther meantime, go to the Yahoo group Autism-Mercury and see what Andy Cutler has to say.
John I regret that I do not think that in this far away corner of southeastern Alberta I could find a DAN doctor even if I knew what it was. I beg to differ that Asperger Disorder is Autism because I heard Dr. Tony Attwood say so when I heard him speak in person before I was diagnosed when I was in that misguided parent thinking I wanted to cure my son.
The thing I want to know, and the question you keep on sidestepping is, how is your son. Tell me about him?
My son's a lot better than he was. There are several posts on the blog that talk about him.
Fore Sam said...
"It would be like a bunch of people with broken legs wanting to celebrate riding in wheel chairs instead of fixing the fracture."
I was thinking something similar right before I read that statement. Seriously, picture yourself not allowing your son to get an operation that would give him his eyesight back? It's child abuse to sit back and not even want to look into the possibility that your child's autism might be caused by mercury in it's body.
You hating autism is like anyone hating a disease or a condition that is limiting your loved one from living a healthy and independent life. A relative of mine has Parkisons and I hate that disease because it has robbed this person of all her potential and freedom. I don't hate her as a sick person but I hate the disease she is suffering from.
John, it sounds like you're a sane person in a group of idiots that don't comprehend the human emotions and how we react when a loved one is suffering.
Maxima, That's why I keep telling Kevin Leitch and the rest of the Neuronitwits that they are child abusers.
Of course, the nitwits who come here to criticize me anonymously all have another agenda of making the drug companies look good. Nobody could really be that stupid to not want autism cured.
But then again there are many deaf people against cocular (sp?) implants for their deaf kids. Who is better able to understand their deaf kids then deaf parents? Do you consider those parents child abusers for wanting their kids to be deaf and be part of their culture. And if so who should be able to decide the fate of a type of person other then other people of the same type, especcially parents?
You make it sound like I just have an autistic child and say lovely he is perfect the way he is and leave him alone. Peter has been to speech therapy, which is why he never shuts up now, lol. He didn't say full sentences until he was 7. All through school he was in regular classes with one-on-one aides because we are in a small community and that's how it done.
He has always had psychology, OT and PT assessment in school every year. He has gone through programs in the small city close to us and special needs camps in the summer until he was 12 and could tell me very plainly he didn't want to go anymore. Then we found a nice community kitchen where he was treated like a normal kid.
Which is what everyone including an autistic who walks, talks and looks like everyone else wants to be.
So please stop jumping to conclusions about me. And john would you just tell me some simple things about your son or at least a date to look on this blog.
You impress me as someone who is angry and upset for some reason.
I am curious.
Why do you say we come on Anyomously we don't. I come on and give you my real name. You come on with this psuedo name.
I understand why you want to cure something you don't understand. I ran a parents of autistic group for two years. I understand you people because I used to be one of you. Desperately trying hoping my child would be like the other children.
I am glad he is not now. Have you seen the other children? He was the best one to raise of my 3 children, the easiest the kindest. I feel sorry for all your children when they grow up and the read this blog and others like it. Children like it are now on other blogs and myspace pages. Talking about how their parents don't understand.
Kids like mine will never be on any blogs or myspace unless they are cured. Don't you understand that kids who can't talk, read, write or get toilet trained will never be able to do anything for themselves? Your asperger's kids are a whole different ballgame. So, shut up and stop trying to confuse the issue.
Hey idiot! She said he didn't speak until 7. Now go look at the DSM-IV defination of asperger's; it says "In contrast to Autistic Disorder, there are no clinically significant delays in language" so therefore a kid who isn't speaking until 7 is an autie, not an aspie.
I understand what you mean my son Peter was diagnosed with autism and at one time I thought he would not be able to come as far as he has. I have been surprised, I have been surprised a lot in life and how much he has taught me once we have been able to have conversations especially since I left my first husband.
At one point I didn't even see the need for Peter to have a desk because I didn't think he would be able to do homework by himself. I never had to help him with homework through junior high school at all he wouldn't let me.
You still haven't told me how old your child is but I suspect that he is not as old as mine. Never old back the dreams of a child if not you might as well put them in a cage and call them an animal.
Dragon, The DSM is missing lots of stuff. It's also put together by psychologists or psychiatrists which means it's pure bullshit.
Anon, My son's 10.
So basically DSM-IV is wrong, you are right, I get it now! /end sarcasim. So what do you call a boy that doesn't speak until 7, or does he just magically go from being autistic to being asperger's.
Dragon, You wouldn't want to account for improvement and lose services and social secority, would you?
If the DSM-IV is wrong, Foresam, then the 1 in 166 stat you cling onto is gone. Where will that leave you?
With egg on your face, that's what!
When you look at your son John do you see a brain damaged Autistic and you see him smiling back at you or do you see the light of your life like you should?
Daisy, I see both. Sometimes I just smile and enjoy him and sometimes I feel like crying and beating his pediatrician to death very slowly.
All parents are frustrated by their parents John. I don't know whether you have other children or not. I do. I love them all equally. At one time they were all diagnosed differently one bipolar, one ODD and my autistic. The first two were identical twin girls. My girls are living independent lives of their own now, I think just self-medicating with alcohol almost 20 like most people their age.
I think you have faith in something, doctors do what doctors must. We has parents of special needs children shouldn't be fighting each other it is frustrating enough. We all love our children. You treat your child how you think best I'm you think you are. But leave yourself open to possibilities no one not even you knows what he is thinking?
Or is your ego really that large?
sometimes I feel like crying and beating his pediatrician to death very slowly
That's your problem right there. You are looking for someone or something to blame. Stop - it's going to destroy you if you don't.
John, it sounds like you're a sane person in a group of idiots that don't comprehend the human emotions and how we react when a loved one is suffering.
What you don't seem to accept, Maxima, is that in the case of Autism the suffering is life long. That can not be denied. You can do what you can to relieve the suffering but will never be removed utterly without the very support the "idiots" are promoting. And the fact that Foresam is against such support - promoting it as supporting the poisoning of children (when such poisoning does not exist when it comes to this garbage that Autism is mercury poisoning).
And Autism and Aspergers are siblings incidentally.
The fact remains that the poem published above supports the view that people with ASD's need to be allowed to be themselves - not abused. Foresam is engaging in this abuse. I just hope that he doesn't directly cause a suicide with his foolish behaviour.
Do not delete this message, Foresam. Allow me my constitutional right to speak.
You do not have a constitutional right to speak anonymously on my blog. However, since you help Neurodiversity look more idiotic, I'll allow it. Thank you.
Other anonymous nitwit, We already found the criminals responsible for poisoning our kids. Our elected scumbags are letting them get away with this crime of negligence. I suppose if I poured a bottle of bleach down your kids throat, you'd accept it without blaming me for any wrongdoing. Simpleton!
This is another poem wrote mainly about is father who misunderstood him when we were living with until he was 12, I will let it speak for itself. Peter wrote it when he was 13.
Memories
I remember you being there for me. But
I remember wrong.
I remember you there with me. But
I remember wrong.
I remember you understanding me. But
I remember wrong.
I remember that you felt my pain. But
I remember wrong.
I remember that you trusted me. But
I remember wrong.
I remember that you respected me. But
I remember wrong.
I remember you spent time with me. But
I remember wrong.
I remember but I don't understand why you used me.
I suppose if I poured a bottle of bleach down your kids throat, you'd accept it without blaming me for any wrongdoing.
Yes, because consuming bleach kills outright.
But there is no poisoning. You're looking to blame someone for something genetic. Get over it!
Nitwit, Autism is not genetic, none of it. There was no such thing 76 years ago. The only way you can prove your point is to show me 76 year old autistics at the rate of 1 in 166. If you can do that, I'll kiss your ass.
You do not have a constitutional right to speak anonymously on my blog.
Yes I do. It's called freedom.
Diane MacNaughton aka daisy aka daisybirdtwo and aka anonymous said...
A lot of people on the ASD in adulthood will develop mental illness because they have deal with NT's and the world they live in. My bipolar was triggered by phen-fen.
You were not born with manic-depression and my son was not born with autism.
What makes you think that Phen-fen can adversely affect brain function and vaccines can't?
Anonymous said...
in the case of Autism the suffering is life long. That can not be denied.
So why would ND activists not want to prevent life long suffering?
Fore Sam said...
Watson, I looked at that group. It seems there are a bunch of them who were diagnosed as adults.
John, the more posts I read from adults diagnosed with Aspergers, the clearer the picture becomes - for me at any rate.
Most relate stories of an unhappy childhood, physical and/or sexual abuse, bullying at school, abusive fathers or mothers or husbands, and a history of mental illness of one kind or another. They all have a story to tell, and these people have at last found their niche in online support groups discussing how difficult life has been for them, with others who have equally harrowing stories to tell.
ND has become a Club for the Underdog.
And although I understand exactly what you mean by your analogy, these people don't have broken bones, but broken spirits, and an Aspergers' diagnosis enables them to get ASIH and live solitary lives, living at a distance from what they have experienced as a cruel and heartless world.
I believe it's only going to get worse, because more and more unhappy people have heard about Aspergers and can identify with the symptoms, and "Aspergers" provides THE reason for their unhappiness. They were raped by their grandfathers, bullied at school, or abused by their husbands, misdiagnosed with a mental illness, all because of something called "Aspergers". It wasn't their fault. They feel they have been socially naive and misunderstood all their lives. Aspergers provides the explanation, and becoming part of the neurodiversity movement gives them an outlet for their frustrations, a way of getting back at the enemy (NTs) they see as having ruined their lives, and an opportunity to try and make the world a better place for the misfits and the downtrodden. It's a crusade.
While we have been seeking to cure our vaccine-damaged children, and wondering where all the adults with autism were hiding, ND activists have been busy recruiting the unhappy, the lonely, and the mentally ill (and their sympathisers). And psychiatrists have been willing to diagnose them with ASDs without any evidence of problems during early childhood. They have provided the hidden horde of adults with "autism".
So now there are thousands upon thousands of bitter and twisted adults either with 'the label' or self-diagnosed, who they think they know what our children have, and they don't.
It's very, very frustrating.
endersdragon, the rate of PDD is flexible, the rate of autism is not.
The rate reached 1 in 166 in the year 2000. Since then, more and more babies, children and adolescents have been diagnosed with an ASD. Some of these children actually have Reactive Attachment Disorder, Fetal Alcohol Syndrome or Spoiled Child Syndrome but, because "Atypical autism" sounds a helluvalot better to parents, and these children need the same type of services as children with autism, they are being diagnosed with an ASD, and this is increasing the "autism" rate.
As I said earlier, the rate of autism in NZ is 1 in 100. It is 1 in 87 in the UK. And if ADHD is included as an ASD - which has been suggested - the rate of "autism" would skyrocket overnight to 1 in 8 children.
Do you really think that 1 in 8 children have Autism?
John is right. The DSM is bullshit.
Watson, No argument about the ND's being mentally ill. Did you ever see the Adult autism picture project?
DSM, imagine that David Andrews was allowed to have input to that, what other nut cases might have contributed to it?
Phil, is that Phil Schwartz or Phil Gluyas who was giving me a hard time on Autism Vox? Doesn't matter, one's as daffy as the other.
Like I've been saying, the ND's are very naive and perfect victims for the Neurodiversity cult to be abused by the likes of Seidel, Joseph and others who just use them to make the drug companies look good.
Anonymous nitwit, You just keep posting. It might be good therapy for you.
Like I've been saying, the ND's are very naive and perfect victims for the Neurodiversity cult to be abused by the likes of Seidel, Joseph and others who just use them to make the drug companies look good.
Absolutely.
And I'll eat my hat if Prometheus isn't Stephen Barrett of Quackwatch.
We should ask the guy from quackbusters what he thinks about that. I can't think of his name, do you know who I mean?
Not sure. Tim Bolen?
http://www.quackpotwatch.org/WisconsinWar/who_are_these_so.htm
I'll look into it.
Yup, That's him. Bolen's a good guy. He seemed to enjoy making a monkey out of Barrett.
Sadly Watson I have to admit that everything you say is true. Mental Illness can I don't think I have ever disputed that mercury has caused some autism, I just don't think has caused my son's. I also think that Aspergers is a type of Autism. I dislike the concept of high and low functioning autism although the terms are useful in talking to NT's. I believe that with my son and I it is genetic since I can remember him from birth. I can speak about your child or anyone else's because I have met them why you and this John make bold statement's about others and myself I have no idea.
Do you really think that 1 in 8 children have Autism?
No, but 1 in 8 would be on the Autistic Spectrum - which includes Aspergers Syndrome, ADD, ADHD and PDD-NOS. Been that way since the DSM-IV came out.
That is - if you believe some of the psychiatrists who don't know how to use the DSM - or others who won't stand up to parents who want their children labelled so as to avoid their own parental shortcomings.
Daisy, the problem with people who have joined the ranks of the ND movement is that they don't know, or don't seem to care about what's going on behind the scenes. Their conversation revolves around themselves and/or their child, financial support and services, and a desire to change attitudes towards people who behave differently. Nothing else matters.
If you really believe that "some autism is caused by mercury", then why have you become an advocate for the Neurodiversity movement which celebrates autism and is pro-vaccine and anti-cure?
I don't think anyone would argue with their aim to improve attitudes towards unusual people, and make the world a better place, but, as John has said, to celebrate autism is insane. And not to address the cause of autism is immoral.
You say you dislike the concept of high and low-functioning autism, and yet you must know that there's a huge difference between autism and Aspergers, and neither Kanner nor Hans Asperger, was describing quirky kids.
When Neil shared his concerns about this with your support group two years ago, you said "As long as we get the services we require that's all that matters."
Neil's post is beneath yours, here:
http://health.groups.yahoo.com/group/AS-and-Proud-of-it/message/42696
That distresses me because it's a selfish attitude, which is not uncommon among ND advocates.
Do you think we should celebrate autism in children affected by mercury who, without thimerosal in vaccines, wouldn't have damaged brains and autistic behaviours?
Should I have held a party when my son was two, when he could no longer talk or communicate with us and spent his days playing with doors, drawers, and lightswitches and his nights running around the house and jumping on his bed, when he screamed and fought like a wild animal? Do you think my son's behaviour was the result of a "healthy difference in neurological hardwiring"?
I know that his behaviours were caused by vaccines, just as you know that your manic-depression was triggered by Phen-fen.
Why do you think the concept of Neurodiversity began in 1999? Who started it and why? And by that I mean, why at that particular point in history.
Anonymous said...
No, but 1 in 8 would be on the Autistic Spectrum - which includes Aspergers Syndrome, ADD, ADHD and PDD-NOS. Been that way since the DSM-IV came out.
Which DSM-IV? The one in 1994 or the DSM-IV-TR in 2000?
It wouldn't surprise me in the least if some children with ADHD and ADD have been included in the autistic spectrum since 2000. I have met one child with a diagnosis of 70% ADHD and 30% Aspergers. How do you think that was calculated?
That is - if you believe some of the psychiatrists who don't know how to use the DSM - or others who won't stand up to parents who want their children labelled so as to avoid their own parental shortcomings.
Or prefer an ASD label to RAD, FAS or SCS. Who wouldn't?
Babies and toddlers were not being diagnosed with atypical Aspergers in the 90s. Neither were shy and studious adolescents. And they are now. Why is that?
Fore Sam said...
Yup, That's him. Bolen's a good guy. He seemed to enjoy making a monkey out of Barrett.
Well, well, well.... I've just discovered that Barrett has been on the Advisory Board of ASAT (Association for Science in Autism Treatment) since 1999.
And, John, look who's with him....
http://www.asatonline.org/about_asat/board.htm
Eric Fombonne!
The plot thickens.
To answer Watson, could it be because Asperger's wasn't in the DSM-IV until the mid 90s or would that be too obvious for you???
Also maybe that is why we see people diagnosed with asperger's as adults, because the diagnoses wasn't around when they were kids. Isn't that a much more logical solution then they are looking for attention.
Watson, That figures. I'd love to see Tim Bolen take an interest in thimerosal. I asked him about it once and he didn't seem very interested. He's busy with lots of other things.
Dragon, Anyone diagnosed as an adult is looking for an excuse, not attention. If they were such a wreck that they qualified for a diagnosis, they would have earned it as children. No, adults who are diagnosed with Asperger's are probably just shirkers and rejects who like to cry about their problems instead of solving them.
How can you be diagnosed with something that is largely unknown about (find me an article or TV show from before 1995 talking about asperger's) and isn't even in DSM-IV, the "diagnostic manual" psycatrists in America use. That is pretty messed up logic even for you.
Foresam, you are a fool. Because Aspergers Syndrome wasn't on the DSM-IV until the 1990's there were bound to be a heap of missed diagnosis results for it that totally justifies the number of adults being diagnosed.
For instance - a child born in the 1960's who was suspected as being Autistic but failed the test at the time would have been diagnosed in their 30's when the DSM-IV was first introduced.
Why - pray tell - would that not be possible? Explain it to me.
I said...
Why do you think the concept of Neurodiversity began in 1999? Who started it and why? And by that I mean, why at that particular point in history.
endersdragon said...
To answer Watson, could it be because Asperger's wasn't in the DSM-IV until the mid 90s or would that be too obvious for you???
How many adults at that point, in 1999, had been diagnosed with Aspergers? If they had been severely impaired as children, they would have been diagnosed with a PDD.
Do you think that it is right that many self-identified Aspies who don't even have a diagnosis are allowed to describe what autism is like at Autism conferences?
Why do you think that people with such heartbreaking stories to tell, don't want our children to have any treatment or therapy, when it is beneficial in most cases and some children have completely recovered?
How ridiculous for anyone to speak out against treatments and therapies, that work for many children with autism, because they might kill some imaginary 'autistic person within', as if at some future time the child with autism might morph into an Einstein, and yet at the same time, they say that parents are wasting their time trying to cure their child because there isn't a neurotypical child hiding within.
I think that Aspies who are celebrating Autism should work with children and adults with autism. Perhaps washing a few dirty bottoms and coping with a violent and out of control 'autistic person' would put a damper on their enthusiasm for celebration.
Why are activists pro-vaccination?
endersdragon said...
Also maybe that is why we see people diagnosed with asperger's as adults, because the diagnoses wasn't around when they were kids.
Although there are adults who claim to have been diagnosed with Aspergers before 1994, you are right, Aspergers wasn't added to the DSM until 1994, but atypical autism, childhood-onset pervasive developmental disorder and residual autism were already in the DSM_III of 1980. So was "atypical PDD".
Oh my watson you are just a little fountain of information. And so sure of yourself. Here I am an adult diagnosed with aspergers and I never knew that I was diagnosed because I was seeking attention. You are probably right though I buy t-shirts, write letters to the editors and proud of who I am just like a real adult.
In fact I have so much self-esteem that today I am going to go and to a heath council meeting advocate for mental health consumers today and a family assessment meeting for my child. Because I am a parent and a community member.
I don't answer the phone much though because I don't like to, I don't like crowds, I am actually very sensitive. In fact I really don't like attention at all.
I am curious about you are you a parent or do you just like to come on John's blog and agree with him like a little lamb.
However, generally one up until this decade and even the past few years, associates autism with Rainman. A parent would not be likely to see her little kid as autistic if he isn't stimming 24/7, always flying into rages (which that could be an interesting test as I know quite a few people diagnosed as adults that were diagnosed with ODD and other disorders as kids), and have alot of other problems.
I think what we are seeing here is you think that it needs to be extremely severe to be asperger's. A kid who has no friends, stims in private for the most part (God knows parents of undxed aspies try to wean them out of that), and isn't always raging but sometimes is, etc; isn't an aspie to you, but he/she is to the general defination of Asperger's. The point I am getting at is, whats in a name, would an aspie by any other name not act just as weird.
Daisy said...
I am curious about you are you a parent or do you just like to come on John's blog and agree with him like a little lamb.
I am curious about you, Diane, do you have dyslexia in addition to manic depression?
Read my posts... carefully.... to find out whether I am a parent or not, and if I agreed with John that you were seeking attention.
How about responding intelligently to some of the questions I've posed?
endersdragon, I think for a diagnosis of Aspergers, behaviours should be severe. Have you read Hans Asperger's papers? There's very little difference between the children he described and Kanner's. "Acting weird" or having OCD, for example, should not equal Aspergers. But it does today.
Do you think that today Jack Nicholson's character with OCD in As Good as it Gets would be diagnosed with Aspergers? I do. Except I don't think Aspies would like the image.
You ask, what's in a name?
Under normal circumstances, labels are meaningless, but let's rewind to the 90s and pretend you're a vaccine manufacturer who has just been warned that a vaccine ingredient, never tested for safety, and used for 70 years, might be causing neurological disorders in hundreds of thousands of children.
What would you do?
What would governments do?
What would the WHO do?
As a rule, in their eyes, the number of children damaged and killed by vaccines is acceptable, but what if a grossly unacceptable number of children were severely damaged in just over a decade? Do you think they would come clean or try to cover it up?
In that situation, a label would be most useful to them, don't you think?
Watson, That figures. I'd love to see Tim Bolen take an interest in thimerosal. I asked him about it once and he didn't seem very interested. He's busy with lots of other things.
John, do you think the name Barrett might stir him up a bit, seeing as he is advising against any alternative treatment for our children?
I was very angry when I saw that ASHA had banned AIT in 2003 after some studies they did with..... wait for it.....mentally retarded children.
http://www.asha.org/about/publications/leader-online/archives/2003/q3/030805c.htm
ASHA members and certificate holders may be found in violation of the Code of Ethics if they provide services, such as AIT, for which there is no reasonable expectation of benefit.
Another beneficial treatment for some children with autism quashed by the establishment.
Watson, It would be great if Bolen took an interest in thimerosal. I'd guess he knows what Barrettt is up to.
As for AIT, I had someone come to my house to try to sell it to me in 1999. I thought it was a sham and have no reason to suspect it would help. Maybe they made a good decision on that. Do you know anyone who's been helped by it?
Yes. My son. He had AIT when he was six and not only did it help with hypersensitive hearing and auditory processing, his co-ordination and balance improved as well. Of course, it won't do anything for a child who doesn't have these problems. That's why the study was useless.
The Sound of a Miracle, and Dancing in the Rain: Stories Of Exceptional Progress by Annabel Stehli are worth reading.
Watson, Great that it helped. There's always more than one solution to a problem.
While Sam never responded to anything before chelation, one could have attributed that to auditory processing. Since he learned language and began responding, you could say the result was the same using different methods.
Fore Sam said...
Watson, Great that it helped. There's always more than one solution to a problem.
While Sam never responded to anything before chelation, one could have attributed that to auditory processing. Since he learned language and began responding, you could say the result was the same using different methods.
Well, that was ten years ago, John, so Andy Cutler and the type of chelation you're using with your son wasn't around in those days. Sadly. I wish I had been able to address my son's biomedical issues sooner.
AIT wasn't the only intervention we used....
Fortunately, a few months after my son was vaccine-injured - regressing after a vaccine reaction at the age of two, losing language, eye-contact, the ability to communicate, and developing typically autistic behaviours - I started researching autism and came across Catherine Maurice's book Let Me Hear Your Voice. It gave me hope that he might recover.
I used ABA techniques on a daily basis and my son started to use words again. His speech was stilted, robotic, and mostly echolalic, but at least he was able to communicate some of his needs.
At age four he still didn't recognise or respond to his own name.
When he was five, we consulted an MD-turned homeopath, and after only six weeks of remedies and supplements my son realised that he could talk to us. It was like an inner awakening and as his communicative language increased, his meltdowns decreased.
His face lost its mask-like appearance after a few months of taking the antioxidant, Pycnogenol. He had AIT at six, because certain sounds terrified him and any type of music bothered him. Melatonin helped him sleep through the night - although we only used it occasionally when we were desperate for sleep.
Supplementation with zinc for just one week, after five years of bowel problems and chronic diarrhea, and he had his first normal stool.
AIT was followed by a course of cranial osteopathy which certainly helped - he seemed much more relaxed. Patterning (Doman-Delcato method) and edu-kinesiology have also been very beneficial. So has the gf/cf diet, non-fluoridated water and toothpaste, and the Feingold diet.
At 16, he is still taking homeopathic remedies, supplements... and we have recently added ALA.
To celebrate autism and speak out against treatment for the symptoms of brain damage and a dysfunctional immune system is just totally insane! And I'm glad to have found your blog, John. It's so good to hear someone else saying this. And you make no bones about it. I like that.
Watson, You went through a lot of things. It's good to have responsible parents talk about how they helped their kids.
The neuronitwits don't bother me as much as they used to. They are probably questioning the deranged philosophy of Neuroinsanity and learning how to cure their kids now.
Thank you for answering my questions Watson. I am dyslexic to a degree. I switch my letters when I type but that did not stop me from having a successful home typing business/word processing business in my 20's where I did essays for University students. I would work 90 hours a week and let them proofread a draft. It does not seem to effect reading. I did notice when I recent cash office position when I was tired I had trouble with reversing numbers.
As I have stated at least once I have no trouble with your methods of treating your children. We all use what ever means we can to help our children. It is the attidude towards people on the ASD that we object to. Just the name of the blog is disquieting.
Yesterday I went to a Family Assessment for the PAS program the my son will go into to get a break from highschool. He revealed what happened during his second suicide attempt when he was 9. He was going to cut his head off in one of those big paper cutting machines in his classroomss. He said none of his classmates was going to stop him because he was seen as a monster. In his eyes it is because it is because he is known as the boy with autism. That is why he thinks of himself as evil. I hope that clarifies my position.
I really couldn't care less whether you think I'm asperger or not I have my diagnosis from a psychiatrist I trust and who is trusted in my community. Why would I care what you think about that.
I care what the idea of Hating Autism and the need that there not thinking, caring autiscs out there is doing to our children.
Daisy, Anyone who does not hate what autism has done to their child belongs in a padded cell. If you don't hate the medical profession, the drug makers and the scumbag politicians who allow this to continue, you are out of your mind. Now shut up and cure your kid !
Oh I see the problem I look at my child and I see a bright intelligent funny boy with some social communication problems who is misunderstood. You have a brain damaged child that you blame every body else as the cause. A long list. We don't have padded cells in our psych ward though.
It is a locked room though and they give you a mattress on the floor but only if you really misbehave.
Thank you for making things really clear sometimes you just really have to do that with me.
Daisy, Maybe your son is just shy. Give him a few beers and see if he opens up.
The only people I blame for my son's brain damage mislabelled as autism are the jackasses who never bothered to test thimerosal for safety and the doctors who never bothered to figure out how much mercury they were shooting into out infants.
That was the most sensible sounding post I've heard yet from you John. I'm sure my Peter would like that. However my son is not shy. He has never I had any trouble communicating with adults, it is his peers. I don't think the beer would mix well with his meds he is on risperdal to make his mind go more slowly. That is what he told the Family Assessment fellow yesterday.
His favorite drug is chocolate though and after a large chocolate bar he can not even see the writing on page. I'm sure that would be the effect you are looking for. He makes an absolute fool of himself in public after too much sugar.
I'm sorry that you don't really understand the social difficulty misinterpreting body language which comes with delayed language skills. And not picking things up that everybody else seems to know. It would come in handy as a parent.
Daisy said...
I really couldn't care less whether you think I'm asperger or not I have my diagnosis from a psychiatrist I trust and who is trusted in my community.
Oh. It's not important, but I thought you said elsewhere that the "pdoc" who diagnosed you had moved back to the States.
I'm very sorry to learn that your son's autism has caused him to feel suicidal at times. There's no doubt about it, life is extremely difficult for our children, even for those with HFA - and taking an anti-psychotic drug for life doesn't sound like much fun either, particularly with all those known, and dangerous, side-effects.
So tell me, Diane, why have you joined a movement that doesn't believe in treatment, and thinks that autism is so beautiful it should be celebrated?
Watson I see you are getting caught up with tenses at the time my psychiatrist was here in my community he was respected. Unfortunately for an adult to get diagnosed with Aspergers now there are no psychiatrists who are willing to do it now. I lucked out as usual.
As far as Neurodiversity goes it celebrates not autism but all diversity of the mind. If you do not celebrate your child's mind you live in a sad world indeed.
As far as whether mercury causes autism or not I'm sure it has in some cases, there are far too many parents in an uproar. It is logical that some cases have been caused by it. Treatments and torturing children to fit them into the NT society is up to the call of the individual parent.
I am not going to judge another parent for what they do. There are no perfer parents and no perfect children.
Children having tantrums like you described sounds more like my NT twin girls than my autistic son who was much quieter and easier to handle.
Neurodiversity includes all of the lovely bright brains in the world the autistics, bipolars, schizophrenics, aspergers syndrome, personality disorders and NT's. Those people who I call my friends. I live in a brightly coloured world.
would you marry an autistic girl john?
I'm already married.
Daisy said...
Children having tantrums like you described sounds more like my NT twin girls than my autistic son who was much quieter and easier to handle.
You've obviously been lucky. Ask your friend endersdragon what he did to his fellow students and to his teacher when he was a boy.
Neurodiversity includes all of the lovely bright brains in the world the autistics, bipolars, schizophrenics, aspergers syndrome, personality disorders and NT's. Those people who I call my friends. I live in a brightly coloured world.
I am behind the times. I thought Neurodiversity applied to people on the autistic spectrum, not the mentally ill.
I must have missed the "Paranoid Schizophrenia is So Cool" mugs, and the "Manic-Depression is Beautiful" buttons.
It is logical that some cases (of autism) have been caused by it (mercury in vaccines).
So damaging children's brains, and drugging them for life, makes for a more interesting and colourful world, does it?
No wonder Big Pharma loves the Neurodiversity movement!
Watson, I've been giving myself a headache analyzing some tough horse races. I needed a good laugh. Thanks.
Yes I do consider myself I do consider myself lucky and although I was able to give my son vitamins until he was 12. He does need psychotropic medication now. There are lots of people who need medication. People who distinguish between mental and physical disorders and ghettoize people because of it are behind the times. That last time I looked I couldn't remove my head from my body.
If you can not see a world where all people are respected and embrace a movement like that you have the worse kind of colourblindness.
Who cares who your friend John would marry it akin to asking who would marry a Jew in Nazi Germany. An african american in the old south.
My would is brightly coloured. I'm afraid yours will always be black and white.
Hmm, I am curious what you think I did to other students when I was in school. I would frequently rage, but only after being picked on alot. It was the only way I could protect myself, is that so bad? Should I want to be picked on?
Anonymous said...
would you marry an autistic girl john?
Fore Sam said...
I'm already married.
dont duck the question john
If you want a better answer, have the courage to tell me who you are.
The vaccine reactions make complete sense if you read all the studies linking autism with a family history of autoimmune disorders.
http://ebdblog.com/paternalage/
Of course this doesn't help those already born.
http://autism-prevention.blogspot.com/
Studies who cares about them. Anywone ever given them any thought knows that by the time the ink is done on them they are out of date. Most studies are designed to prove the hypothesis so the researcher can get more money an recognition. Most autistics who have learned to walk and talk through therapy or just growing up because it is a developmental disorder will tell you they don't want to be cured if one did exist. However they are ignored because parents just can't accept that idea. It is time to stop think it of us as an Epidemic and try to see as a resource. Figure out how to use our intelligence in society and adapt society to us. So we are more useful.
daisybirdtwo said...
If you can not see a world where all people are respected and embrace a movement like that you have the worse kind of colourblindness.
Anyone who can embrace Big Pharma for adding colour to their world by damaging children's brains, must be completely bonkers.
I'm imagining an entirely new advertising strategy for vaccine manufacturers:
ADD COLOUR TO THE WORLD!
GET YOUR CHILD VACCINATED - NOW!
by MSD, GSK, EL & Co.
"Making your world a more colourful place"
endersdragon said...
Hmm, I am curious what you think I did to other students when I was in school. I would frequently rage, but only after being picked on alot. It was the only way I could protect myself, is that so bad? Should I want to be picked on?
Of course not. But Diane was giving the false impression that autistic children are easier to raise than ordinary kids, and if she'd asked you, she would know that rages amongst autistics are fairly common.
http://www.thetrenchcoat.com/archives/1782-NPR-on-Aspergers-and-the-Lincoln-Sudbury-murder.html
Was it you who broke your teacher's fingers, hit a boy over the head with "nice 2x4", beat another child with a football helmet, and sent kids to hospital to get stitches, and said, "I could have killed someone G_d knows how many times."?
Or was that someone else with the same screen name being schooled by Alyric in the use of logic to give the 'right' impression of people on the spectrum?
It's wrong to paint a bright and sunny picture of autism, and ND advocates are doing just that.
Fore Sam said...
Watson, I've been giving myself a headache analyzing some tough horse races. I needed a good laugh. Thanks.
Pleasure!
concerned heart, so if some babies are more vulnerable than others to side effects from vaccination, wouldn't it make more sense for doctors to screen parents and their babies before they're vaccinated, and to take reports of vaccine reactions seriously?
I have spoken to many parents of children with regressive autism after vaccination who have initially said that their children didn't react, but then they'll admit that they had fever, anorexia, somnolence, and were irritable and fretful, but, they said, they didn't think that these were adverse reactions because their doctor had told them that they were normal events - and nothing to worry about.
No one examines the child at the time of the reaction. Then, after regression, comes the diagnosis of autism - based solely on behaviour.
How many of our children had an encephalitis that was overlooked?
So let me get this straight you think that vaccinating children creates a more colourful world. I think you give my statements to much credit. All I am saying as treat people the same whether they are young, old, or differently brained. It is a simple concept. It is how I have always been even before I was diagnosed with anything.
Why you think your untested vitamins and herbal remedies are better than drugs I have no idea. But I do not judge people you seem to have that covered as well.
I know that lots of people rage, I was giving my personal experience with my family. Take from it what you will.
I do know not want to be cured, and accept myself for who I am. Why did you rage as a child Watson and do you accept yourself and your child for who you are.
A bright and sunny life Watson, I don't think anybody has or should have one. Wherever did you get that impression. Who has that? You assume too much. Why would I care what my friend Endersdragon has done in the past or yesterday for that matter, I make up my own mind about people. Why not cool mugs about schizophrenia, most of the people I know are very nice.
Have you always been closed minded and judgemental? You should try taking people as they come.
daisybirdtwo said...
So let me get this straight you think that vaccinating children creates a more colourful world.
(sigh) NO.
Why you think your untested vitamins and herbal remedies are better than drugs I have no idea.
Because they are natural. They are safe. And they work.
Why did you rage as a child Watson
I didn't.
and do you accept yourself and your child for who you are.
No.
Acceptance = inertia.
All I am saying as treat people the same whether they are young, old, or differently brained.
"Love one another" do you mean? I think someone else beat ND to it and said that 2000 years ago.
daisybirdtwo said...
Why not cool mugs about schizophrenia, most of the people I know are very nice.
What a good idea, daisybird! Why not start making some?
The ND movement should be interested in marketing them for you - but, somehow, I don't think they will.
Daisybirdtwo;
I have worked with people with mental health problems for many years. I have known many schizophrenics who are "very nice" people but who's lives as long term residents of Salvation Army hostels are far from "bright and sunny".
Outside of my work I knew three young schizophrenics, one was an in law of mine, another was the son of a friend of my family and the third was a distant relative.
I say "was", because all three of these young men committed suicide in their early twenties.
They were all "very nice" but they were tortured by a severe mental illness that drove them to kill themselves.
I took these people as they came but it didn't help them. And you say;
"Why not cool mugs about schizophrenia, most of the people I know are very nice."
Are you on drugs or something?
Life has never been the same for my aunt in law since her son took his life six years ago.
It was over the christmas period. She goes through hell, wondering if there was anything different she could have done that would have saved him, and is wracked with guilt over whether it was something she had said or done that had pushed him over the edge.
You've heard the phrase "lighten up"? Well you need to get real. Your shallow, foolish and frivolous attitude to such a serious issue is shameful.
Jonsmum.
If you want a better answer, have the courage to tell me who you are.
Show me you have the courage to answer the question first, you little bully.
I too know people who have committed suicide. It is not an uncommon occurence in my life. Sometimes I think that of the people I know who die in a year it is the leading cause of death. I did not say that mental illness or people with autism are to be take seriously. I said that they are to be accepted as individuals as viable and as intelligent as anybody else.
If they felt accepted they would not have to commit suicide in the first place. I count many schizophrenics among my friends. And I'm sure if you visit cafepress.com you will find a mug for every occasion.
I think people with bipolar commit suicide more than anybody else but I might be wrong I thing it is 20%.
I really don't know why you can't understand the simple concept of accepting everybody for who they are and celebrating the person instead of their condition.
I work with a lovely man on Friday mornings who is a Paranoid Schizophrrenic. Who says there is nothing wrong with him but bad nerves and I think he has the right attitude.
Why a person commits suicide is a personal thing. I know when I am suicidal it certainly has nothing to do with anybody else. It is a dark hole where hardly any thinking is involved. Some people make it out, some don't. It is like any other sickness.
As far as herbal medicine is concerned anything in the wrong quanities is dangerous or mixed the wrong way.
Anon, Is this your way proposing?
Anon, Is this your way proposing?
Obviously you're a bigger coward that I could ever hope to be because you don't have the guts to answer a perfectly simple question.
I'll repeat it - Would you marry an Autistic girl? Yes or No?
Daisybirdtwo;
You said,
"If they felt accepted they would not have to commit suicide in the first place."
And then,
"Why a person commits suicide is a personal thing. I know when I am suicidal it certainly has nothing to do with anybody else."
Don't you realise how you contradict yourself with these two comments?
You also said,
"I really don't know why you can't understand the simple concept of accepting everybody for who they are and celebrating the person instead of their condition."
After saying,
"Why not cool mugs about schizophrenia, most of the people I know are very nice."
Wouldn't "cool mugs about schizophrenia" be celebrating the condition rather than the person?
In another comment you stated,
"Treatments and torturing children to fit them into the NT society is up to the call of the individual parent.
I am not going to judge another parent for what they do. There are no perfer parents and no perfect children."
You ARE making judgements about other parents when you make presumptions/allegations that they are "torturing children to fit them into NT society".
That's not a very "nice" thing to say.
Jonsmum
Anon, Since autism is a spectrum disorder, you'd have to be more specific as well as provicing your name, coward.
Let's take these things one at a time since you don't seem to understand that life is complicated.
First of all with mugs if you go to cafepress.com you will find mugs already in existence which say "Kiss me I'm schizophrenic" and "My voices tell my what to do" although I think the latter is just a t-shirt. So don't presume it is just an idea.
As far as I am concerned desentization of a child is torture. Rubbing rough blocks over a childs skin to try to get them over hypersentivity is torture.
Not accepting people because of the mental illness has led to suicide in people I know and being constantly bullied because he is autistic is why son suicidal now.
However once one is suicidal and is triggered it becomes a personal thing and once in the dark whole the person is the only one that can change it.
And I do judge parents mainly because I am one and I have been done that road.
Daisybird, With your son suicidal, are you embracing the joy of autism and celebrating his diversity? Why don't you tell the nitwits at Neurodiversity to cut the crap and stop claiming that anyone wants to be autistic?
I am a "nitwit" am I? Hmm... It seems that hate and intolerance will never get old.
Stop poking fun at a person son for being suicidal!
I hope that your son doesn't turn out suicidal but knowing how unnaccepting you are towards him, the most likely outcome is that he will be.
Ted Gardner, Never heard that name before. If you think I lump you in as a nitwit because you subscribe to neurodiverse insanity, you can be assured that I do. The insane part of anyone wanting to be autistic is that they have never experienced normalcy so they have no business claiming they don't want it.
Anonymous coward, I'll poke fun at nitwits all I want. The insanity of their philosophy exists for rational people to poke fun at it. Let's see the nitwit balance her son's life against the insane philosophy and come to her senses.
Fore Sam, when have you experienced the autistic life you say no one could possibly want. If an autistic has to experience normalcy to say they don't want that, shouldn't you have to experience autism? I think you just caught yourself in a double standard there. Unless of course you have been autistic.
Dragon, I have no need to experience being autistic. No cured children have askeed to be repoisoned with mercury which proves my point. Now, shut up and go search for some common sense.
LOL good one, but irrevelant. I would like you to show me a "cured" child that was "cured" after they could remember being autistic for that to work. Heck I would like you to show me a cured child period.
Also for that matter do you think any 7 year old really knows what they want? Do cured children ever choose to be cured?
Dragon, Every autistic child wants to be like other kids. They all want to be cured. It's only through insane cults like neurodiversity that any alleged autistic person claims they want to go through life with brain damage.
Just when I thought you couldn't get any dumber... there ya go again. So if Diana's kid told you he wants to stay autistic you will shut up?
Dragon, It's highly unlikely I'd shut up. Any kid that would say that needs to be deprogrammed from the idea that he can never be cured. That kid needs to learn that almost all autism is mercury poisoning and that he should be suing Eli Lilly to fix his damaged brain.
Lol so basically what your saying is that no kid could ever not want to be cured, but if they say they don't want to be cured their opinion is irrelevent. Ever read Catch-22?
Dragon, I read it, great book. Wanting to have autism is crazy.
Actually I have just been talking to my son John about your posts. He does say he would like to be cured but does not believe in the chelaton treatments because of course it has to do with bioplasma. You would have to discuss that with Peter it is rather intricate.
He also wants you to f off and something eat me. But he is a teenager and not as polite as me.
The chelation cures are too expensive for us we are on disability. If I give you our address privately will you send us money. I don't know if we will use it for that but I'm sure we would use it wisely. I think they are $300 Canadian each.
Daisybird, You can buy ALA for less than $10 a bottle. Go to the Autism-Mercury group for instructions on how to use it. You should have taught your son some manners.
Since autism is a spectrum disorder, you'd have to be more specific as well as provicing your name, coward.
What is "provicing"? LOL
What's the matter? Don't have the guts to answer the question? You fit in nicely with the politicians you hate so much, you hypocrite.
Come on, yes or no. One word. Then I'll give you my name, because I asked the question first.
"provicing" is a typo, nitwit.
If she was good looking, toilet trained and cleaned my golf clubs, why not.
Ummm you seem to think autistics are not capable of learning anything, doesn't that include mannors. I think he was just living up to your expectations... can you truely blame for for doing such...
AHA! You don't hate Autism after all! So why are you putting your son through chelation when you'll accept an Autistic for a wife? Huh?
(As agreed, my name is above - and no, typos like that are for emotional train wrecks)
Wanting to have autism is crazy.
I suppose wanting to be homosexual or black is crazy as well, bigot! There is NO CHOICE! Get a brain, dumbo!
Human Being, Autism is curable.
Actually the dear boy came to senses later when I pointed out to him that I wouldn't want to change him. Anyways, then he said that he agreed because he was mentally superior and the makes up for his challenges. He of course uses the word bioplasm. What does ALA stand for? Why should I go to another website when I have you oh wise John?
Oh I took my son to a marvellous event last night in our town we saw Tom Jackson and he was inspired and learned that all people were the same and said he wasn't going to take any sh*t any more. What a bright lad, eh!
Human Being, You're boring me with the same dumb insults. Come up with something new and I'll publish it so you can show off your originality.
They're not dumb insults, bigot. They're damn FACTS! And I'll keep repeating them for that reason!
You want the truth? You can't handle the truth, bigot, so you won't publish it!
AUTISM (like skin colour) IS GENETIC AND NOT CURABLE!!
Anon, Do you own any firearms?
That's a pathetic question on the back of the Viriginia shootings, Foresam. Show some compassion, man!
Pedro, Don't you agree it would be better to identify the crazier ND's so it doesn't happen again?
Now you're being pedantic and emotional. Maybe the other poster was right - you are a bigot. Why label ND's crazy? That's totally lacking compassion, man! So what if the other poster is armed? Unless you're afraid he or she will come after you - and the way you're carrying on.....Christ! You are sure as hell asking for it!
What happened to the compassion you showed when you said you'd marry an autistic girl? That had to take some!
Pedro, You must not be married. There can be advantages to having a non-verbal wife.
Do you have one, Foresam?
Yeah I have a gun for self defence! What's it to ya? I need it!
Anon, You should get rid of it in case you decide the voices in your head are going to attack.
Oh that was a brave comment, Fore Sam. You just love to try and fuck around with people's minds don't you. You are a sicko, buddy. Do YOU own a gun? I hope not because if you do you're another Virginia gunman in the making!
Anon, No, I'm not the type to start shooting innocent people. I'm trying to educate nitwits like you so that sort of thing can be prevented.
A thought recently occured to me, how can brain damage be reversable. Lets pretend for a second that you are right and that mercury does cause autism by causing brain damage. I have never heard of a kind of brain damage that was treatable by removing the cause. Wouldn't the mercury have already done its damage. Could you please explain this to me I am confused.
Dragon, Deth already explained this a few years ago. I explained it somewhere else on this blog recently and I have to go give my son some ALA now so I'm not going to take the time to write it again.
Hey, Foresam, you bigoted COWARD! I tell the truth and you won't let my posts through!
No, I'm not the type to start shooting innocent people.
What about those who are guilty of poisoning children - in your eyes?
Daisybird,
The reason that mentally ill people have a high suicide rate is because their mental illness torments them. If you are on disability and have alot of schizophrenic friends, my guess is that you are actually suffering from some form of mental illness yourself. Possibly schizophrenia. Families with autism also tend to have mentally ill family members. There is a connection there. A great book to read on the subject is "Natural Healing for Schizophrenia and Other Common Mental Disorders" by Eva Edleman.
The reason that mentally ill people have a high suicide rate is because their mental illness torments them.
BULLSHIT! They're not being allowed to cope because OTHERS torment them! Have you ever been bullied? I reckon not!
Anon,
Actually, yes, I have been bullied. I was bullied and picked on all through elementary school and jr. high. I used to stay home sick to get some relief. In 8th grade, I had one boy who made me his "project" and he was in 5 out of 6 of my classes- I went from one hell to another for a year.
Also, my mother was schizophrenic (she is deceased, not from suicide). My mother lost everything. She lost her marriage, her ability to raise her children, her competency at work. She told me what it was like to be schizophrenic, it was hell- on or off meds. The meds just made the mental hell bearable but left her with anxiety, social disorder, ocd, tremors, drooling and weight gain. This is the same person whom I remember from young childhood being tall, strikingly beautiful, conscious of her appearance, having a ton of friends and lots of social engagements until the schizophrenia took over. She sat me down before she died and told me what it was like to be schizophrenic and how she hoped that this hell was not passed on to me or my sister. It is because of her that I have continually sought work in the helping professions- and always end up working with people who have mental disabilities/illnesses.
Before she died, she was trying to treat the schizophrenia naturally but the cancer had already advanced too much. If my mother was alive today, she would be visiting Pfeiffer clinic or another DAN! type doctor. Her and her grandchild would be recovering together. You better damn well believe it.
googlybear I once had the privledge to listen to Temple Grandin in the 1990's. At the time she said a lot of autistic's had parents who were manic depressive's and engineers. It stuck in my head because I am a manic depressive and at the time I was married to my son's father who was an engineer. What that has to do with anything I have no idea.
I was working with one of my friends on Monday. We work in a bookstore run by Canadian Mental Health. She is schizoaffective and I'm sure I don't have explain what that is because you know everything. She said not everyone is as high-functioning as we are who works here.
Later I said I don't believe in the concept of high and low functioning. I believe everyone can do something special. High and low functioning is a professional concept.
I know people with mental illness who people believe in natural cures, who are not stable, who have tried them and gone into debt. There is a lady I know who has multiple personalities who tried that and is now in bankruptcy.
The sad truth of it is here in Canada if we are on disability are meds are paid for the herbal stuff is not. I would rather be stable on my meds and buy food for my family and have a roof over my head.
I have no idea what the big deal is about taking meds is I have been taking meds for my asthma since I was 9. It is just another part of my body. Nobody would go on about being addicted or side effects if I had heart condition.
I know schizophrenics have bad side effects, they take large amounts of antipsychotics. Doctors used to misdiagnose autistics as childhood schizophrenria that is the only connection I know of.
Daisy,
**warning, sarcasm** Yes, I know everything. **sarcasm over** ~grumble~
I just happen to have knowledge in this area because of the family history, the autism and some other issues that have arisen (not mental based) that I have spent quite a bit of time reading about to find the connection. I found the connection. I believe the women in my mother's side of the family have an inherited inability of varying degrees to utilize B vitamins and that zinc imbalances are common too. It seems to cause a mental illness of some kind in about 60%. Fortunately I escaped, but have other related issues like dyslexia and some things related to malabsorption of certain B vitamins. I don't have time to go into all the similarities between autism and schizophrenia. Or how bipolar also ties in. I already reccommended a great book you should read that touches on not only schizophrenia, but autism and bipolar also. I think it will make alot of connections for you and your child. Good luck.
Hi, I am in my early twenties and have only recently discovered that I have high-functioning autism. I am currently looking into chelation treatment and am very intrigued by the information in this website. If somebody reads this comment, can you please give me information about how I can get chelation therapy? are there affordable ways to do it? also, will it be effective for someone in their late twenties? please contact me if you have information: chicagopizza@hotmail.com.
also, if this mercury really happens to be the cause for autism, and I am certainly willing to give credence to this notion, would autism have been documented prior to the usage of thimerosal? if it was still around before the thimerosal was put in vaccines, it would seem reasonable to believe that it could be genetic. also, some families report that autistic behaviors run in their families through several generations. how does the thimerosal theory reconcile with this claim? i am not trying to discount or undermine the claims about thimerosal; again, i have only recently found out about my autism and am really looking for answers. I would appreciate any advice or wisdom people can offer. thanks.
Anon, http://health.groups.yahoo.com/group/Autism-Mercury/
This is the link to a group that Andy Cutler advises, over 7,000 people who chelate with his protocol. You can find his protocol in the "Files" section there. The important thing about it is that you can not chelate if you have dental amalgams and once you start, it's important to take Alpha Lipoic Acid (ALA) at least every three hours. If you miss a dose, stop the round immediately.
There are a few alleged cases of autism prior to 1931. These may have been fragile X or some other genetic mutation. There are well known cases of mercury poisoning like Mad Hatter's Disease. Some associates of the drug companies like to claim that some famous, intelligent people had autism in their attempt to persuade people that autism is something to be celebrated. These claims can safely be ignored.
I am so tired of hearing parents complain about their children who have autism. I have worked at my local school district and have seen parents who are in complete denial. GET OVER IT!! Your child has a disability! Just knocking the shit out’ta these kids every once in a while could cure a lot. Discipline seems to be nonexistent with some of the parents. If your child spits, kicks, or does anything else disgusting to someone--knock the living crap out of them. Parents should realize that they wont be around forever, if they don’t get it right...someone else will. I was thinking about starting a web site "Beat the Crap Out of Autism".
I'm sick of the word epedemic they should just say plague because that's it's real defination and autism is not catchy.
I'm sick of the panic how about some acceptance.
I never want a cure never they can stuff that miracle cure down their own throats.
I have aspergers syndrome and this going around in circles of what causes it won't help anyone face the real person.
If they called a certain race of humans wether white or black an epedemic you can be sure that wouldn't go over well.
Epedemic is a nasty word.
If the parents are so paniced go to an autism conference and meet others.
I don't think the media really doesn't have a personal experince. They just like to make alot of noise with hype.
I just think more people are being diagnosed but I think the autism spectrum people were there all the time.
I've seen in an aspergers art gallery adults with aspergers autism who are alot older.
I love this epedemic just think I won't be so alone saying slow the world down.
Anon,
This blog is about AUTISM, not Asperger's. Autism is a nightmare for the person who has it and everyone who has to deal with it.
There is nothing good about it.
I'll assume you don't smear feces all over the place, do have the ability to speak and are aware enough of your surroundings that you would not walk in front of speeding car. That's the horror of autism that none of the Aspie's who come here to break my balls want to admit exists.
I don't care if you cure yourself or not but, how can you say you don't want to be rid of the Asperger's if you have never known what "normal" is?
Aspergers syndrome is on the Autism spectrum and how can anyone know how awful it is if they haven't been struggling with high functioing autism known as aspergers syndrome.
There's no opnion right or wrong but it would be nice if autism was shown in a postive way and that an epedemic can be good because it changes things.
There are certain things that help not cure my autism at least for me.
Who says these topics should exclude the whole range of autism people including aspergers.
I'm not bashing anyone there's no need to everyones experince is diffrent.
There's no right or wrong because it is what it is.
I suppose since I don't have empathy to understand neurotypicals or classic autism I guess I don't.
The reason I don't want to get rid of aspegers syndrome is because I believe it has a purpose.
No I don't think I;d ever want to be turned normal because I believe my lack of understanding social things has protected me from danger like peer preasure.
I admit I don't know evrything. I'm not afraid to admit that.
I may come across as know it all to you by accident,other aspergers people may come across that way also.
But it has nothing to do with being a know it all.
It's not done on purpose to get attention,it's just expressing our own worlds we love so much.
But sometimes also to bring understanding and love,acceptence.
I didn't know I was sounding that way and I wasn't trying to sound that way.
I was in my own world talking not aware of others.
There's where my high functioning autism is is not noticeing other people existing.
Your right also I don't know what being normal is but please don't use such a scolding tone it's not nice.
There's no right or wrongs.
Things are what they are for a reason,but what reason I don't know.
Feeling pity or feeling bad for myself doesn't help me in the least.
Have you asked an autism person what they think or had exprience yourself?
Your showing Asperger's in a positive way would be agood thing as long as you called it Asperger's.
Calling it autism makes a mockery of the problems kids like my son face. At age 11, he can't speak, isn't toilet trained, bites himself and is never going to be able to take care of himself unless his condition is cured.
So, people who run around talking about idiotic things like the "joy of autism" are making fools of themselves.
No I wouldn't say haveing high functioning autism is easy in fact it's not always high functioing. In fact it gets in the way of what I really want to do.
I can't learn things as fast if at all.
I get overstimulated with noise,with bright lights, and have an overstmulation melt down.
If I don't take my pills I'm so obsessive I'm paralized by my own thoughts.Like I can't move and all I can see is my own or feeling repeative.
The lanquage part of my brain shuts down at times and then people talking sounds like static as if faint radio voice too scrambled to understand.
I walked late and devloped everything late.I need help even now haveing my own place I get help from developmental services.
I'll need help the rest of my life.
I don't know how to be independent so they try to teach me how and sometimes it doesn't sink in no matter if it's done over and over.
I apperciate you Foresam explaing what situation you are in so I know where your coming from.
But don't use the word idiotic because saying that is harsh.
It hurts my feelings it reminds me how there isn't enough unconditional love around for loveing someone just the way they are not that I need it from anyone on this blog but overall.
I didn't get unconditional love from my father because I was an embaressment to him.
He didn't want me around because of me not getting things fast enough.
He didn't know how to love because I wasn't perfect what he expected me to be.
I got help from early on like speech and ot.
But even being taught social on index cards, it not coming naturally. How would I know when to use that social stuff at the right time.I don't.
Ok it is aspergers synodrome but that's why it's on the the other end of the autism spectrum not where your son is.So yes there is a diffrence in its form.
But when i get overstumalted I rock and do repeative things because it's soothing and is like the repeative thoughts in my head.
I do feel helpless and locked in my own world.
I bite myself too because I don't know what I feel.
When I was 11 when things went beyond playing with toys I couldn't connect with the other children at all.
That's why I wonder if I should even be writing on this blog because theres some unwritten social rules that are getting me in trouble with people.
I don't even understand what I did and feel as misunderstood as you do Foresam,I have feelings too.
Maybe I broke a social rule here I'm unaware of.
Social rules on blogs and how I appear to others.
Except I try to be nice is and social rules on blogs or anywhere else is beyond me.
All blogs blur together which has nothing to do with people it's how my brain sees things.
I have suffered that's why I understand suffering maybe diffrently.
Maybe I don't understand what it's like to be your son and I can see your anger and fusteration over the whole thing.
I was bullied badly because also so bad I left school all because I didn't know how to talk like everyone else or understand the social rules.
That's why I'm leaving this group and this blog like alot of blogs seems to be a clique.
Excluding others, Foresam if theyre trying to help then told theyre not helping for shareing their pain how does that make the world a better place?
But my experince is diffrent from yours Foresam that's correct.
But the reason Aspergers syndrome is called high functioning autism is because it's not like your son.
Unconditional love for anyone with chaos acting calm, peopletrying to connect with my high functioning autism world.
Is what gets thru any suffering and non talking not hate or anger I can understand fusteration but not to be taken out on others.
Because when I struggled at least my mom loved me and I know she tried to help.
But I have to live myself and not wait for a cure to feel alive.
I have to live now it doesn't have to do with being postive. If I didn't feel those so called "idotic" postive feelings I'd be dead from suicide really.
I've thought at times a cure would be nice when the world moves too fast.
When I can't take in whats around me without getting hurt from the bright lights and noise.
But unconditonal love and being calm is the best things that have been for me.
To show I still love you even if you have trouble speaking or don't talk at times or get it.
That doesn't have to be from a hug ether or any physical contact.
This is the last time I'll post here it's too confusing overall I'm not wanted here so I'll go elsewhere where I am wanted where I'm going to do a panel.
But I'm not going to let Foresams harsh words get me down because he has no power over me to leave this board.
It's because of the social confusion, blogs aren't for me I'm reminded.
I've said everything I wanted to say anyway.
Say what you have to express Foresam it's all yours but it was never mine.
I will continue to share elsehwere no matter what ignorance and harsh words come my way.
Also how would you define "normal" foresam?
Sir. I am not really "anonymous." I have been a participant in the Aspies for Freedom forum as "A True Monotheist." I beg you to consider that you have been misled by the very forces you sincerely believe you are opposing. The vaccine-Autism link theory will appeal to a certain group of thinkers, namely independent minded people (the very group of people who, ironically, tend toward neuro-diversity when it is presented to them). Failing to take vaccines will open those very people to horrible diseases, fostering their elimination and replacement by people who follow orders blindly. The dark forces use incredible deception, Mr. Best, and although you sincerely believe that you oppose them (I believe that now), you are capable of being misled by them through your incredible pride. Instead of opposing us, you should join us in a common front to shut down the Judge Rottenberg Center and to end eugenics. We can agree to disagree on the issue of vaccines, but surely you would agree that cruelty and genocide are evil. I apologize for some of my harsh previous accusations made before. I believe that you are unknowingly misled. Yes, I agree that mercury in vaccines is evil. However, the purpose of some of the the beliefs that you have sincerely bought in to may be to discredit all vaccines, leaving the "useless eaters" vulnerable. Do you really want to serve the very shadowy entities, the NSSM 200 crowd who want to eliminate useless eaters, that poisoned us to begin with? Think about what I am saying. All the best.
AFF Denizen,
There is no eugenics. And, there never will be since there is no genetic marker for autism.
Yuh, I'd favor shutting down JRC if they opened up a clinic that treated the most severe autistics medically to improve their lives in the same fashion. Until people like AFF stop fighting that progress, we're stuck with JRC as a last resort method of helping the most severely affected. Better to shock them than to let them kill themselves by bashing their heads into cement walls.
You won't publish my comment? Cool.
You're an asshole =/
Please do some more research before jumping to conclusions like this.
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