Wednesday, December 10, 2008

Please Vote for Autism Reform Act

Here's the link to the page below on It would be nice if enough people voted for this to knock an inane idea like mandating that Esperanto be taught in schools out of the top spot. You have to register, then respond to an email that they send you to vote.

Accept and Sign " The Autism Reform Act of 2009"
As a country we have watched Autism Spectrum Disorders grow in a devastating number. Over the last decade it has spiraled so quickly out of control that: 1.) There must not just be one person but an ENTIRE U.S. OFFICE OF COMPLIANCE for Educating Children with Autism. 2.) The use of Time Out Rooms, Corporal punishments, Restraints, and the high amount of Abuse must be monitored with severe penalties to states and fines or conviction of those that break such a REFORM Law. 3.) School Districts/States must each have an " Office of Autism Education Compliance or be subject to loss of Federal Funding. 4.) Due Process Hearing Officers must NOT be employees of the state and shall be employed by the Federal Government ONLY. 5.) Insurance companies MUST provide the Early Interventions such as ABA Discreet Trial at no cost to parents. 6.) Protection and Advocacy MUST be funded properly to allow parents that need help get it without any more then a 15 day waiting period.7.) Grants for research, education, and non profit organizations for those with Autism Spectrum Disorders must be made in the amount of 5 billion dollars.8.) Relief for parents who have paid out of pocket to educate their children must be made swiftly with 100% reimbursement. 9.) Behavior Intervention Plans must accompany all Individual Education Plans.10.) Insurance companies must make available all resources for children and adults with Autism Spectrum Disorders including but not limited to any items deemed necessary by the physician for the treatment of metal toxicities and any other theraputic orders their physician may order. 11.) The Autism Reform Act shall consider all Autism Spectrum Disorders including Aspergers. 12.) This Reform Act must be 'open' for additions as needed and create a 12 parent panel to propose such additions.

- Michael Robinson (Founder The Office of Advocacy) Dec 09 @ 01:40AM PST


Ender said...

Wow... is this possible... could we... actually... agree... on something?

Anonymous said...

Many changes within the ACT shall be done to not only help the children more but to as well include the adults on the spectrum that need many issues met. We have taken into consideration all requests for changes to the ACT and will make appropriate changes before the final draft that will be presented. It is now #5 out of the top 10 Ideas in America for Change. Here is today's posting to parental yahoo groups:

Door is OPEN- 5th Highest Overall Rated Idea for Change in America..
Posted by: "Michael E. Robinson, Sr." peace4kids
Thu Dec 25, 2008 11:54 pm (PST)

Throughout the last few weeks we have had several what I would
call 'shocking' reports regarding the treatment of children with
disabilities and as well the treatment and retaliation of those who
try to help them. The CNN reports of time out rooms and cells should
concern EVERY parent regardless of whether their child is disabled or
not.. if for you have not looked at this site I believe you should,
however awful it may be it is the horrifying truth for the children in
our schools...regardles s of disability or none.
http://www.cnn. com/2008/ US/12/17/ seclusion. rooms/index. html
After viewing the article and seeing the video of the father of
the child from GA. that died in one recently, it is not a 'fun'
subject to discuss - but discussion must take place and action after such.
The other very shocking news came to you in a post recently..
Regarding an Arizona Advocate that is facing 150 plus years prison in
a retalitory action against him due to the fact he was a 'winning'
advocate with not only a record of due process wins. The arresting of
him with guns drawn is simply wrong. Haven't we had enough ?
So, many parents and those on the Autism Spectrum have responded
rallying the " Autism Reform Act of 2009 " , And relief for those that
have been or are in Special Education or Disabled ".
This is not a replacement for the ADA but I personally think the "ARA"
should be an ACT that is reauthorized and continued after it has been
made acceptable to the President Elect and the Legislative branch that
will ratify and fund it.
CHANGE IN AMERICA. In the 'Education' category it is 1st by almost 600
votes and almost 800 votes over the 3rd place idea that will also make
it to the final round.
We have made a statement as not only parents but also those on the
spectrum or with other disabilities. I believe strongly that the
'force' of the movement of parents must at some point, and I believe
the time is NOW, join together with the large population of those on
the spectrum or disabled that are Adults. This is for them, and if we
are going to speak for them they not only deserve a 'say' in it, they
are needed for input that has already been crucial in revising the
proposal in ways I believe will be more acceptable to the
President-Elect and to the entire community that needs to merge..those
with disabilities on the spectrum or not, and those that are parents
of disabled children and are going through the education process. By
looking at the 'finished product' or person that has gone through
special education we get insight that we could only get from someone
that has actually been in the students chair, been denied something
unfairly as an adult such as SSI, being put on waiting lists for
Medicaid waivers, and so on. How long should we just sit here and say
" I don't like this part" " We can't fund this " (We've funded
bailouts totaling a trillion plus when you include the fannie/freddie
and we've also spent just as much/more on war) " This should be
changed " (well email me or respond with some constructive input for a
change or addition to the the ACT) "I just don't have time to read
this post or concern myself with this
because..... ..." (Our children and those that are older kids of ours
come first, take the few moments and do what you can to make the
difference.. Please) " I don't think the Aspies and others that are
adults can make these kind of decisions " ( Believe me they can and
already have !)
So lets open our minds to the possibility of real " Change " , the
kind that counts. Regardless of what political party we follow,
regardless of what beliefs we have that are different " I like the
GFCF diet " " I think HBOT is the way to go " " I think chelation is
all that works " " All kids need a 1:1 aide (this may be close to very
true for the younger kids on the spectrum and with other disabilities) ".
REGARDLESS.. . we must join together and forget about indifferent
feelings on subjects that will result in absolutely NO funding unless
we come together in a strong accord and make something happen.
This is not 'my' act.. as I've said before it belongs to the people,
made by the people, and for the people. I'm just a concerned dad with
a big mouth that types fast (but I can say enough is enough, time for
change NOW) ! No more kids need to die, no more adults on waiting
lists due to underfunding the Medicaid Waiver program, no more kids in
unsafe inappropriate environment pulling out their hair as the one
young girl did in a time out room.... The bottom line is we have an
OPEN DOOR now.. we have attention and need to go after it. Please
email me offlist at Peace4kids@. .. and let me know your input. It all
counts.. some are major ideas and some are compiled with 'like' ideas,
all of which will appear in some shape or form on the final proposal.
The input I am now getting from the Adults on the spectrum is quite
large. We have several 'groups' ....and in the last 12 years I have
not seen unity at all within them.. lets as parents be patient and
listen to our kids...let them give Adults they have valuable
information. .And those on the spectrum or with other disabilities. .
try to keep an open mind as far as the possibility we now have as the
5th highest rated idea in America and Number 1 in Education a basic
'given'. Those who haven't supported.. please take the time to
register and support - your input matters.
http://www.change. org/ideas/ view/accept_ and_sign_ the_autism_ reform_act_ o\
Michael E. Robinson, Sr.
The Office of Advocacy for Autistic Children(soon to be Individuals) .